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General Parenting
My son is Explosive! PTSD,CD,ODD,RAT
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<blockquote data-quote="Marguerite" data-source="post: 303160" data-attributes="member: 1991"><p>Linda, your suggestions will work, but only if it isn't Prader-Willi. We encourage our kids to drink water because it's good anyway, plus helps them feel more full and slows down the casual grazing. But a Prader-Willi person's stomach stretch receptors don't work, so they don't feel any distention in thestomach from drinking water or from over-eating. That is a big danger - they really can literally eat until they burst, because they just don't know. So they have to be constantly watched and their intake supervised.</p><p>Very exhausting. I can't imagine the torture of living with this, of always feelnig hungry, never feeling like you've eaten enough and always being stopped from eating. Constantly. The weight gain that happens so easily until you've also got severe problems with obesity and obesity-related health issues. The whole package - just awful.</p><p></p><p>That's why I really hope the testing gives you a better answer than PWS.</p><p></p><p>Marg</p><p></p><p>A suggestion form my friend with a Prader-Willi kid - she got a bag full of those UHT individual milk portions and would let him have one, as a treat. She used them as rewards for good behaviour.</p></blockquote><p></p>
[QUOTE="Marguerite, post: 303160, member: 1991"] Linda, your suggestions will work, but only if it isn't Prader-Willi. We encourage our kids to drink water because it's good anyway, plus helps them feel more full and slows down the casual grazing. But a Prader-Willi person's stomach stretch receptors don't work, so they don't feel any distention in thestomach from drinking water or from over-eating. That is a big danger - they really can literally eat until they burst, because they just don't know. So they have to be constantly watched and their intake supervised. Very exhausting. I can't imagine the torture of living with this, of always feelnig hungry, never feeling like you've eaten enough and always being stopped from eating. Constantly. The weight gain that happens so easily until you've also got severe problems with obesity and obesity-related health issues. The whole package - just awful. That's why I really hope the testing gives you a better answer than PWS. Marg A suggestion form my friend with a Prader-Willi kid - she got a bag full of those UHT individual milk portions and would let him have one, as a treat. She used them as rewards for good behaviour. [/QUOTE]
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My son is Explosive! PTSD,CD,ODD,RAT
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