Hello,
My daughter was just diagnosed with this too. Everything started about a year and a half ago with a limp that progressed. Finally we got an orthopedic consult and they decided she had a SCFE. Did surgery inserted a pin and were told in 6 weeks she would be fine. She wasn't, then referred to Rheumatology and underwent tons of physio, Rheumy medications, joint injections, etc and nothing helped. Finally this summer they did a synovial biopsy and found no inflammation. So now we were told this is what she has, she has been referred to a surgeon for hip replacements. She has gone from running and jumping a year and a half ago to being totally in a wheelchair with no joint space or cartlidge left. Its bone on bone on both sides. Her only option we are told is total hip replacements. She is 12 years old. So now we are waiting for the surgeon consult and a point where she can't tolerate the pain any longer. She's on 500mg naproxsen 2 times a day, they want to take her off that and just use tylenol and advil but when we tried she was in such pain all she did was lay there and cry so I put her back on the naproxsen. Does anyone have experience with pain medications that are less hard on the stomach and effective on the pain??
Thanks and nice to meet you all
Lorrine