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Need advice from those who are chronically ill (long)
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<blockquote data-quote="Nomad" data-source="post: 259587"><p>That's really interesting about the Topamax making her cry. Elavil is an antidepressant. Perhaps that would be more appropriate. Perhaps she can't take Topamax or at most, she can take 25 mgs. Topamax is a REALLY tricky medication. You have to start on a tiny dosage and work your way up. When I took too much of it...it depressed me. Much of this was because it made me feel like a ding bat. The lower dosages don't bother me nearly as much and I appreciate the headache relief. <strong><u>I would try to find a neurologist who has either an interest in headaches or an interest in psychiatratry...ideally both. </u></strong></p><p> </p><p>AND I think taking those tablets you mentioned to stop headaches as much as she is taking them is way too much. Perhaps once a month is more like it. Instead, <strong>Frova or Imitrex</strong> would be a much better choice. These are the medications that one might take for a difficult headache problem.</p><p> </p><p>If this gets REALLY complicated...you might have to find a psychopharmocologist. (sp?). Just find a caring and qualified physician, educate yourself a little, use common sense, try things for a reasonable amount of time and don't hesitate to get a second opinion. It REALLY is worth it. </p><p> </p><p>Additionally, the next time she goes to the doctor, if it hasn't been done already, I would have her thyroid levels checked. If she has a low thyroid level...this could cause all sorts of problems.</p><p> </p><p>by the way, if you want to do more in life, in my humble opinion, this is <u>not</u> "selfish." I think it is noble for you to want to help your daughter, but <strong>wise</strong> for you to also want to be <strong>good</strong> to yourself. <strong><u>I do NOT see a conflict here.</u></strong> By helping her get healthier and moving to part time school, <strong>both </strong>things can be accomplished. Perhaps your daughter is worried that you will try to force her to full time school. You might want to double check your heart and ask your husband what he thinks. If that is the case, you can assure her that unless there is a change, you think going to school pt would be fine for the next several years at least and indefinately if necessary. It would be impossible to predict the future. However, I would really try to at least get her to the school part time. I sense she needs a little bit of a challenge and you need the "space."</p><p> </p><p>I do hope that you can find a physician who will help your daughter and family. Give him or her at least a few tries. If you are unhappy, <strong>get a second opinion.</strong> You and your daughter are <strong>entitled to health and happiness.</strong> <strong><u>Do not be afraid.</u></strong> Consider going to the library or checking amazon.com and getting the <strong>books </strong>I mentioned below. </p><p> </p><p>As a side note: I partially homeschooled our daughter for two years. It was <strong>by far</strong> the <strong>BEST</strong> years she had academically. The times we have <strong>pushed </strong>both of our children, were the times that they have <strong>grown.</strong> And recently, I have pushed myself and it has <strong>paid off significantly</strong>.</p><p> </p><p> </p><p>If you find this has helped you...I do hope you will let me know.</p><p>Wishing you strength and happiness.</p></blockquote><p></p>
[QUOTE="Nomad, post: 259587"] That's really interesting about the Topamax making her cry. Elavil is an antidepressant. Perhaps that would be more appropriate. Perhaps she can't take Topamax or at most, she can take 25 mgs. Topamax is a REALLY tricky medication. You have to start on a tiny dosage and work your way up. When I took too much of it...it depressed me. Much of this was because it made me feel like a ding bat. The lower dosages don't bother me nearly as much and I appreciate the headache relief. [B][U]I would try to find a neurologist who has either an interest in headaches or an interest in psychiatratry...ideally both. [/U][/B] AND I think taking those tablets you mentioned to stop headaches as much as she is taking them is way too much. Perhaps once a month is more like it. Instead, [B]Frova or Imitrex[/B] would be a much better choice. These are the medications that one might take for a difficult headache problem. If this gets REALLY complicated...you might have to find a psychopharmocologist. (sp?). Just find a caring and qualified physician, educate yourself a little, use common sense, try things for a reasonable amount of time and don't hesitate to get a second opinion. It REALLY is worth it. Additionally, the next time she goes to the doctor, if it hasn't been done already, I would have her thyroid levels checked. If she has a low thyroid level...this could cause all sorts of problems. by the way, if you want to do more in life, in my humble opinion, this is [U]not[/U] "selfish." I think it is noble for you to want to help your daughter, but [B]wise[/B] for you to also want to be [B]good[/B] to yourself. [B][U]I do NOT see a conflict here.[/U][/B] By helping her get healthier and moving to part time school, [B]both [/B]things can be accomplished. Perhaps your daughter is worried that you will try to force her to full time school. You might want to double check your heart and ask your husband what he thinks. If that is the case, you can assure her that unless there is a change, you think going to school pt would be fine for the next several years at least and indefinately if necessary. It would be impossible to predict the future. However, I would really try to at least get her to the school part time. I sense she needs a little bit of a challenge and you need the "space." I do hope that you can find a physician who will help your daughter and family. Give him or her at least a few tries. If you are unhappy, [B]get a second opinion.[/B] You and your daughter are [B]entitled to health and happiness.[/B] [B][U]Do not be afraid.[/U][/B] Consider going to the library or checking amazon.com and getting the [B]books [/B]I mentioned below. As a side note: I partially homeschooled our daughter for two years. It was [B]by far[/B] the [B]BEST[/B] years she had academically. The times we have [B]pushed [/B]both of our children, were the times that they have [B]grown.[/B] And recently, I have pushed myself and it has [B]paid off significantly[/B]. If you find this has helped you...I do hope you will let me know. Wishing you strength and happiness. [/QUOTE]
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Need advice from those who are chronically ill (long)
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