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Need advice from those who are chronically ill (long)
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<blockquote data-quote="Marguerite" data-source="post: 259755" data-attributes="member: 1991"><p>YOu do sound like you're encouraging her to push just tat little bit more, especially for a one-off activity. I'm glad she has agreed to have a friend over twice a month, too. </p><p></p><p>I want Occupational Therapist (OT) emphasise - what I say to do what you can within your limitations, I mean just that - WITHIN LIMITATIONS. Those limitations will change from day to day. A problem you can get, is to let the frustration get to you, of being angry at not having as productive a day as you wanted. But that only slows you down even more because anger is tiring. Acceptance is also important (a difficult skill for any of us, especially a teen).</p><p></p><p>With the noise factor of school - a good point. Would wearing headphones, or white-noise generator, or possibly entering/leaving at a time when the corridors aren't full of noisy kids, be a possibility? We had to make similar precautions at school for difficult child 3, because he would find the noise a really big deal. He had a CD player with headphones, we chose the music carefully to be stimulating but not distracting, but to also drown out the student noise problems. We also ensured he had somewhere at school he could go, to get away from the bustle when he needed to concentrate better.</p><p></p><p>It really does sound like full-time attendance could be too much for her right now, although if she wants to try it I would let her but put in the "escape clauses" where you can (nurse's station for respite, leave/arrive during quieter times, partial attendance, half-time workload, headphones/sunglasses etc).</p><p></p><p>Anything she can do, even for a little while, is a bonus.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 259755, member: 1991"] YOu do sound like you're encouraging her to push just tat little bit more, especially for a one-off activity. I'm glad she has agreed to have a friend over twice a month, too. I want Occupational Therapist (OT) emphasise - what I say to do what you can within your limitations, I mean just that - WITHIN LIMITATIONS. Those limitations will change from day to day. A problem you can get, is to let the frustration get to you, of being angry at not having as productive a day as you wanted. But that only slows you down even more because anger is tiring. Acceptance is also important (a difficult skill for any of us, especially a teen). With the noise factor of school - a good point. Would wearing headphones, or white-noise generator, or possibly entering/leaving at a time when the corridors aren't full of noisy kids, be a possibility? We had to make similar precautions at school for difficult child 3, because he would find the noise a really big deal. He had a CD player with headphones, we chose the music carefully to be stimulating but not distracting, but to also drown out the student noise problems. We also ensured he had somewhere at school he could go, to get away from the bustle when he needed to concentrate better. It really does sound like full-time attendance could be too much for her right now, although if she wants to try it I would let her but put in the "escape clauses" where you can (nurse's station for respite, leave/arrive during quieter times, partial attendance, half-time workload, headphones/sunglasses etc). Anything she can do, even for a little while, is a bonus. Marg [/QUOTE]
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Need advice from those who are chronically ill (long)
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