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The Watercooler
Need advice from those who are chronically ill (long)
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<blockquote data-quote="Star*" data-source="post: 259788" data-attributes="member: 4964"><p>I have no knowledge of Lymes and some personal from Obsessive Compulsive Disorder (OCD), but bunches and bunches of migraine and cluster headache info. </p><p> </p><p>I have tried everything for relief of migraines. Due to finding my triggers I am now limited to two crippling migraines a year. I can't talk, can hardly walk, can not see, blood pressure goes into stroke range and I get a nasty little cocktail of Delauded, Morphine and Phenegrin (all spelled horrible wrong). I sleep - the blood vessles relax. </p><p> </p><p>I have to watch my triggers - some I can control like no MSG, not wearing my hair in a pony tail, not wearing head bands or barrettes, avoiding certain cat dander, and some I can not - like the weather, stressful situations (some), strong perfumes or scents, staring at a computer screen that isn't height matched to a task chair, prolonged mononotous noises and bad lighting. </p><p> </p><p>I have found that taking a plain old aspirin once a day helps but the best help I've gotten was Relpax. It's expensive and not a daily medicine, but if taken at the onset of light auras or pressure? Stops a headache flat 8 out of 10 times. If you take Excederin Migraine daily? Eventually you are giving yourself a bigger problem than you had to start and coming off of caffeine (it's key ingredient) is HEll on earth. Caffeine withdrawls hoover badly. </p><p> </p><p>If she can't handle the school atmosphere - how about getting a teacher to come to your home instead? One on one? We did it with Dude and it worked great until he felt he had "ougtrown" her. In your daughters case of course she has Lymes and Obsessive Compulsive Disorder (OCD) - which I can't imagine the pain - but she could build up to maybe one day a week going in the morning hours. Then the rest at home with her teacher. We lucked out and got a former SPED teacher who had semi-retired. Worth a look around to get her on the SD payroll to help your daughter. </p><p> </p><p>Sending hugs - I live with someone who is chronically ill - no fun at all. </p><p>But it makes the good days extra special.</p></blockquote><p></p>
[QUOTE="Star*, post: 259788, member: 4964"] I have no knowledge of Lymes and some personal from Obsessive Compulsive Disorder (OCD), but bunches and bunches of migraine and cluster headache info. I have tried everything for relief of migraines. Due to finding my triggers I am now limited to two crippling migraines a year. I can't talk, can hardly walk, can not see, blood pressure goes into stroke range and I get a nasty little cocktail of Delauded, Morphine and Phenegrin (all spelled horrible wrong). I sleep - the blood vessles relax. I have to watch my triggers - some I can control like no MSG, not wearing my hair in a pony tail, not wearing head bands or barrettes, avoiding certain cat dander, and some I can not - like the weather, stressful situations (some), strong perfumes or scents, staring at a computer screen that isn't height matched to a task chair, prolonged mononotous noises and bad lighting. I have found that taking a plain old aspirin once a day helps but the best help I've gotten was Relpax. It's expensive and not a daily medicine, but if taken at the onset of light auras or pressure? Stops a headache flat 8 out of 10 times. If you take Excederin Migraine daily? Eventually you are giving yourself a bigger problem than you had to start and coming off of caffeine (it's key ingredient) is HEll on earth. Caffeine withdrawls hoover badly. If she can't handle the school atmosphere - how about getting a teacher to come to your home instead? One on one? We did it with Dude and it worked great until he felt he had "ougtrown" her. In your daughters case of course she has Lymes and Obsessive Compulsive Disorder (OCD) - which I can't imagine the pain - but she could build up to maybe one day a week going in the morning hours. Then the rest at home with her teacher. We lucked out and got a former SPED teacher who had semi-retired. Worth a look around to get her on the SD payroll to help your daughter. Sending hugs - I live with someone who is chronically ill - no fun at all. But it makes the good days extra special. [/QUOTE]
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Need advice from those who are chronically ill (long)
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