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<blockquote data-quote="rlsnights" data-source="post: 310412" data-attributes="member: 7948"><p>If it is a possibility for you to travel to Bethesda, Maryland, I would contact the NIMH about getting him into one of the pediatric mental health research programs there.</p><p></p><p>They are always looking for kids whose families are willing and able to bring them to NIMH and put them inpatient for several weeks. They provide accommodation for the parent nearby and are likely to cover your travel expenses too.</p><p></p><p>Once they have evaluated him with-o medications they will try different medications and attempt to stabilize him before you take him home. It's my understanding that they will also coordinate care with your local doctors which will pretty much take care of the crappy medical team issue. The local docs will get put through the wringer if they refuse to do what the NIMH team tell them to do.</p><p></p><p>It's a big commitment but it may be your best resource given what you've reported.</p><p></p><p>Here's a link to the page about bipolar research studies. Sounds like your child would be a candidate for the severe mood and behavior dysregulation study. There may other studies that are a better fit but it will get you started. You can call (301) 496-8381 </p><p></p><p><a href="http://patientinfo.nimh.nih.gov/BipolarDisorderPediatric.aspx" target="_blank">http://patientinfo.nimh.nih.gov/BipolarDisorderPediatric.aspx</a></p><p></p><p>You and your husband are wonderful and clearly doing your best to do the right thing for your child. Many people would have long since abandoned such a child to the child protective/foster care system. Hang in there - I would call NIMH tonight and leave a message. They may not call you tomorrow but probably you'll hear from them on Monday.</p></blockquote><p></p>
[QUOTE="rlsnights, post: 310412, member: 7948"] If it is a possibility for you to travel to Bethesda, Maryland, I would contact the NIMH about getting him into one of the pediatric mental health research programs there. They are always looking for kids whose families are willing and able to bring them to NIMH and put them inpatient for several weeks. They provide accommodation for the parent nearby and are likely to cover your travel expenses too. Once they have evaluated him with-o medications they will try different medications and attempt to stabilize him before you take him home. It's my understanding that they will also coordinate care with your local doctors which will pretty much take care of the crappy medical team issue. The local docs will get put through the wringer if they refuse to do what the NIMH team tell them to do. It's a big commitment but it may be your best resource given what you've reported. Here's a link to the page about bipolar research studies. Sounds like your child would be a candidate for the severe mood and behavior dysregulation study. There may other studies that are a better fit but it will get you started. You can call (301) 496-8381 [url]http://patientinfo.nimh.nih.gov/BipolarDisorderPediatric.aspx[/url] You and your husband are wonderful and clearly doing your best to do the right thing for your child. Many people would have long since abandoned such a child to the child protective/foster care system. Hang in there - I would call NIMH tonight and leave a message. They may not call you tomorrow but probably you'll hear from them on Monday. [/QUOTE]
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