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Need Seizure Info - Please Help!!
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<blockquote data-quote="Stella Johnson" data-source="post: 304508" data-attributes="member: 9"><p>Susi,</p><p> </p><p>How is she doing now? Any updates? </p><p> </p><p>It really doesn't sound like seizures to me. I know you mentioned the other day that she comes to get you when it's happening. I've never seen someone able to verbalize and walk to get help while in the middle of any kind of seizure. It sounds like a neuro thing whatever it is. </p><p> </p><p>I'm sure you know I have RSD in my left arm/hand. Sometimes when the pain is really high my muscles in my left arm will tense and release rapidly and it will shake uncontrollably, not wildly but it is visible. </p><p> </p><p>Why is the pediatrician refusing to give the results of the EEG? Was it performed at a hospital? If so, order copies of your records. Or order copies of your records from that doctor's office. If he is refusing to give info on a test you paid for I'd find another doctor. </p><p> </p><p>Sorry you guys are going through this. She's so young to have so many problems. <img src="/community/styles/default/xenforo/smilies/felttip/sad-very.png" class="smilie" loading="lazy" alt=":sad-very:" title="sad-very :sad-very:" data-shortname=":sad-very:" /></p><p> </p><p>Hugs,</p><p>Steph</p></blockquote><p></p>
[QUOTE="Stella Johnson, post: 304508, member: 9"] Susi, How is she doing now? Any updates? It really doesn't sound like seizures to me. I know you mentioned the other day that she comes to get you when it's happening. I've never seen someone able to verbalize and walk to get help while in the middle of any kind of seizure. It sounds like a neuro thing whatever it is. I'm sure you know I have RSD in my left arm/hand. Sometimes when the pain is really high my muscles in my left arm will tense and release rapidly and it will shake uncontrollably, not wildly but it is visible. Why is the pediatrician refusing to give the results of the EEG? Was it performed at a hospital? If so, order copies of your records. Or order copies of your records from that doctor's office. If he is refusing to give info on a test you paid for I'd find another doctor. Sorry you guys are going through this. She's so young to have so many problems. :sad-very: Hugs, Steph [/QUOTE]
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Need Seizure Info - Please Help!!
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