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<blockquote data-quote="SRL" data-source="post: 175414" data-attributes="member: 701"><p>Hi Tate1 and welcome.</p><p> </p><p>I'm not really savvy on epilepsy medications but some of the parents who are will no doubt check in here soon. </p><p> </p><p>I'm a mom of a child who had debilitating anxiety when he was younger and who had a bad responses to the medications we tried. I'm very concerned that the docs would opt to continue your child on this medication with such a severe side effect. Severe anxiety is not something most kids bounce back from easily: it took one full year to get my difficult child back to baseline behaviors after the anxiety/medication crash. </p><p> </p><p>Were all behaviors and developmental milestones were on target until he started this medication?</p><p> </p><p>I'm not sure what the psychiatrist is hoping to accomplish with a partial program or by what they think you will gain by seeing a psychologist to work on behavioral issues. in my opinion, there is absolutely no working on behaviors that are caused by medication reactions in a 3 year old. </p><p> </p><p>Knowing what I know now and having lived to tell about it, I'll tell you what I'd do if I were in your shoes. I'd get him scheduled at one of the bigger clinics such as Mayo Clinic or somewhere similar on the east coast where you'll find some of the best neurologists in the world and where they are set up to deal with out of town patients. There is so much going on developmentally at this age that I wouldn't mess around. If he's this sensitive to medications you want to make sure there are no other underlying issues and have the best people possible working to adjust the medications. </p><p> </p><p>A word of advice about the trips out: most young children with the issues that you are describing won't be able to handle trips out to stores, etc. I know it's incredibly difficult for the family but if you have other options than to take him out, it would probably avoid some problems for you.</p></blockquote><p></p>
[QUOTE="SRL, post: 175414, member: 701"] Hi Tate1 and welcome. I'm not really savvy on epilepsy medications but some of the parents who are will no doubt check in here soon. I'm a mom of a child who had debilitating anxiety when he was younger and who had a bad responses to the medications we tried. I'm very concerned that the docs would opt to continue your child on this medication with such a severe side effect. Severe anxiety is not something most kids bounce back from easily: it took one full year to get my difficult child back to baseline behaviors after the anxiety/medication crash. Were all behaviors and developmental milestones were on target until he started this medication? I'm not sure what the psychiatrist is hoping to accomplish with a partial program or by what they think you will gain by seeing a psychologist to work on behavioral issues. in my opinion, there is absolutely no working on behaviors that are caused by medication reactions in a 3 year old. Knowing what I know now and having lived to tell about it, I'll tell you what I'd do if I were in your shoes. I'd get him scheduled at one of the bigger clinics such as Mayo Clinic or somewhere similar on the east coast where you'll find some of the best neurologists in the world and where they are set up to deal with out of town patients. There is so much going on developmentally at this age that I wouldn't mess around. If he's this sensitive to medications you want to make sure there are no other underlying issues and have the best people possible working to adjust the medications. A word of advice about the trips out: most young children with the issues that you are describing won't be able to handle trips out to stores, etc. I know it's incredibly difficult for the family but if you have other options than to take him out, it would probably avoid some problems for you. [/QUOTE]
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