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General Parenting
New diagnosis for Tigger: generalized epilepsy
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<blockquote data-quote="rainyseason" data-source="post: 384072"><p>Congrats on a diagnosis! My son is also 11 and has epilepsy. For him Lamictal was out. He developed SJ syndrome and cant take it. But now we're on Trileptol & Topamax sp? I can say them, can't spell them....LOL It's our last ditch effort. We've been through a few pills for our son. I'm hoping we make some progress this time around. difficult child has had seizures his whole life. His eeg shows them every 3 seconds. But his grand Mals only appear at night. He doesn't have the frame on his bed (less far to fall) & we've been given diastat rectal emergency medications. Any GM lasting more that 3 minutes has to be shut down. Unfortunatly, difficult children cause him to stop breathing. All of his muscles are seizing so badly, that he cant take in air. While the diastat carries risks of resp failure, the GM's are worse, so we tend to weigh each one to see whether or not its needed. Two weeks ago he spent 3 days on the pediatric epilepsy unit. The eeg showed that his current medications are showing an improvement. Keeping fingers crossed to see how long....</p></blockquote><p></p>
[QUOTE="rainyseason, post: 384072"] Congrats on a diagnosis! My son is also 11 and has epilepsy. For him Lamictal was out. He developed SJ syndrome and cant take it. But now we're on Trileptol & Topamax sp? I can say them, can't spell them....LOL It's our last ditch effort. We've been through a few pills for our son. I'm hoping we make some progress this time around. difficult child has had seizures his whole life. His eeg shows them every 3 seconds. But his grand Mals only appear at night. He doesn't have the frame on his bed (less far to fall) & we've been given diastat rectal emergency medications. Any GM lasting more that 3 minutes has to be shut down. Unfortunatly, difficult children cause him to stop breathing. All of his muscles are seizing so badly, that he cant take in air. While the diastat carries risks of resp failure, the GM's are worse, so we tend to weigh each one to see whether or not its needed. Two weeks ago he spent 3 days on the pediatric epilepsy unit. The eeg showed that his current medications are showing an improvement. Keeping fingers crossed to see how long.... [/QUOTE]
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New diagnosis for Tigger: generalized epilepsy
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