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New here...need help with tic disorder / tourettes
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<blockquote data-quote="aeditha17" data-source="post: 130236" data-attributes="member: 4486"><p>I agree with JoG. Tics are suppossed to come and go - that's the very nature of Tourette's Syndrome. My 11 y/o son has been diagnosed since age 7 and we have bad days and good days and also bad seasons and good seasons. </p><p>Really, try for another neuro evaluation. Call around and see who is pediatric and has special interest in movement disroders - they tend to have much better diagnostic processes.</p><p>Watch the medications - from personal experience we never had good luck with them. Our pedi neuro said it best and I quote him often. "You have to decide when the tic or behavior truly interferes with daily life. Is his need to hang the clothes in his closet in a color-coded order really a problem or just a unique part of who he is? Is the hand wringing tic causing difficulty or discomfort, or is it just something unique to your child?" </p><p></p><p>We had to step back and take an inventory and we came to the conclusion that we were going with-o the medications (besides, he has ADHD andADHD medications make Tourette's Syndrome worse, usually). Though we have had success with the Omega 3 and watcing his caffiene intake. Also, believe it or not, he just started karate and he seems so much more centered now.</p><p>Also, be aware of all the difficulty a Tourette's Syndrome kid faces at school (even if yours is not formally diagnosed, take a look at these things, it may help strengthen your case for a Tourette's Syndrome diagnosis). </p><p></p><p>1. Graphomotor skills - sloppy handwriting, resistance to completing handwritten assignments</p><p>2. The end of the school day tic explosion because they have been holding it in or back at school</p><p>3. Timed tests. BIG problem with us. The anxiety over taking the test makes his tics worse, then he can't complete anything in time because he's ticcing.</p><p></p><p>Just a few things to share from my personal experiences.</p><p>Good luck to you!!!!!!</p><p>{{HUGS}}</p><p>Brandi</p></blockquote><p></p>
[QUOTE="aeditha17, post: 130236, member: 4486"] I agree with JoG. Tics are suppossed to come and go - that's the very nature of Tourette's Syndrome. My 11 y/o son has been diagnosed since age 7 and we have bad days and good days and also bad seasons and good seasons. Really, try for another neuro evaluation. Call around and see who is pediatric and has special interest in movement disroders - they tend to have much better diagnostic processes. Watch the medications - from personal experience we never had good luck with them. Our pedi neuro said it best and I quote him often. "You have to decide when the tic or behavior truly interferes with daily life. Is his need to hang the clothes in his closet in a color-coded order really a problem or just a unique part of who he is? Is the hand wringing tic causing difficulty or discomfort, or is it just something unique to your child?" We had to step back and take an inventory and we came to the conclusion that we were going with-o the medications (besides, he has ADHD andADHD medications make Tourette's Syndrome worse, usually). Though we have had success with the Omega 3 and watcing his caffiene intake. Also, believe it or not, he just started karate and he seems so much more centered now. Also, be aware of all the difficulty a Tourette's Syndrome kid faces at school (even if yours is not formally diagnosed, take a look at these things, it may help strengthen your case for a Tourette's Syndrome diagnosis). 1. Graphomotor skills - sloppy handwriting, resistance to completing handwritten assignments 2. The end of the school day tic explosion because they have been holding it in or back at school 3. Timed tests. BIG problem with us. The anxiety over taking the test makes his tics worse, then he can't complete anything in time because he's ticcing. Just a few things to share from my personal experiences. Good luck to you!!!!!! {{HUGS}} Brandi [/QUOTE]
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