OneSweetWorld
New Member
Hello all
I am new to this board and really glad I found this site. I hope someone can help me understand all of this as it is new to me. I was not sure where to post this, so please direct me to the right forum for the future if you can. Thanks
First off my name is Christine, I have two children, Hannah 8 and Jakob that will be 7 next month and we live in MA. I am here cause of my Jakers.
Give a little background on Jake without writing a book. My son has alot of chronic GI issues going on. He had a surgery done three years ago that caused major damage to his stomach, and now is solely feed thru a J-tube ( a tube that bypasses the stomach and goes directly into the small intestine) Due to weight issues, we had him put in the hospital in July of 06, we worked real hard on getting his tube feeds up, and within 24 hours, Jake was puking 24/7...needless to say, here we are 17 months later and his medical issues just grew. He was later diagnosis with Cyclic Vomiting Syndrome...for the last 17 months, he has bee in and out of the hospital, at least 50 times due to the CVS. He has a central line for quick IV access, which has helped, but he vomiting gets so bad he needs to be sedated and pumped with fluids.
During this time, Jake's behavior issues were getting worse. We were doing time outs and such in the hospital, even had his doctors, GI and neuro often speak with him on how he was acting, but things only got worse. We chalked alot of this up to being in and out of the hospital so much, but finally in Sept we took him for outside of the school that is, Neuro psychiatric testing. We are in the process of getting the core testing done at school now.
We were dealing with issues of chronic temper tantrums that will last for hours, he would often do things to hurt his sister such as taking the TV remote control and bashing her on the back of the head with it for no reason, and admit he could not help it. He would have massive melt downs if I say no, so we avoid taking him to public places. He interrupts when I am talking, even though he knows not to, he destroys his sister's stuff on purpose cause he is mad. My child is like an engine, he gets off the bus at 3pm and does not stop moving until I give him his night medications that literally make him sleep...the problem is at school he is a whole different kid. They can not pry a word out of him. He often goes to the nurse or the bathroom when he is board..and let him go due to his medical issues. He is behind in school, and they are working with him, but he is not making progress like they were hoping. He did go to half day kindergarten last year and missed most of it...so this is his first year having full day school.
Due to his medical issues he is able to get extra help after school, which we are currently working on to get going.
As for the testing, he was diagnosis with ADHD, Anxitey disorder and ODD. We have a neuro who is waiting for the full report before we start looking at medications with him. I wanted to do the Fine Gold Diet, but due to the fact that most of his food comes from a medical formula, this is not an option. I would love to do more natural ways vs medications, but to be honest I am not against medications at this point, if I know they can really help.
Does anyone else have a child that causes no problems at school, but comes home and turns into a whole different child? How do I get him to do one page of homework without a fight? How do I get him to stop running around the house and jumping on the couch and beds for hours at end?
I know our situation is different due to his GI issues, but I need some help, advice on what to do next.
We do have a neuro that knows Jake very well, so again he is just waiting on the report to be sent to him before we try medications.
Any help or information would be appreciated
Thanks
Christine
I am new to this board and really glad I found this site. I hope someone can help me understand all of this as it is new to me. I was not sure where to post this, so please direct me to the right forum for the future if you can. Thanks
First off my name is Christine, I have two children, Hannah 8 and Jakob that will be 7 next month and we live in MA. I am here cause of my Jakers.
Give a little background on Jake without writing a book. My son has alot of chronic GI issues going on. He had a surgery done three years ago that caused major damage to his stomach, and now is solely feed thru a J-tube ( a tube that bypasses the stomach and goes directly into the small intestine) Due to weight issues, we had him put in the hospital in July of 06, we worked real hard on getting his tube feeds up, and within 24 hours, Jake was puking 24/7...needless to say, here we are 17 months later and his medical issues just grew. He was later diagnosis with Cyclic Vomiting Syndrome...for the last 17 months, he has bee in and out of the hospital, at least 50 times due to the CVS. He has a central line for quick IV access, which has helped, but he vomiting gets so bad he needs to be sedated and pumped with fluids.
During this time, Jake's behavior issues were getting worse. We were doing time outs and such in the hospital, even had his doctors, GI and neuro often speak with him on how he was acting, but things only got worse. We chalked alot of this up to being in and out of the hospital so much, but finally in Sept we took him for outside of the school that is, Neuro psychiatric testing. We are in the process of getting the core testing done at school now.
We were dealing with issues of chronic temper tantrums that will last for hours, he would often do things to hurt his sister such as taking the TV remote control and bashing her on the back of the head with it for no reason, and admit he could not help it. He would have massive melt downs if I say no, so we avoid taking him to public places. He interrupts when I am talking, even though he knows not to, he destroys his sister's stuff on purpose cause he is mad. My child is like an engine, he gets off the bus at 3pm and does not stop moving until I give him his night medications that literally make him sleep...the problem is at school he is a whole different kid. They can not pry a word out of him. He often goes to the nurse or the bathroom when he is board..and let him go due to his medical issues. He is behind in school, and they are working with him, but he is not making progress like they were hoping. He did go to half day kindergarten last year and missed most of it...so this is his first year having full day school.
Due to his medical issues he is able to get extra help after school, which we are currently working on to get going.
As for the testing, he was diagnosis with ADHD, Anxitey disorder and ODD. We have a neuro who is waiting for the full report before we start looking at medications with him. I wanted to do the Fine Gold Diet, but due to the fact that most of his food comes from a medical formula, this is not an option. I would love to do more natural ways vs medications, but to be honest I am not against medications at this point, if I know they can really help.
Does anyone else have a child that causes no problems at school, but comes home and turns into a whole different child? How do I get him to do one page of homework without a fight? How do I get him to stop running around the house and jumping on the couch and beds for hours at end?
I know our situation is different due to his GI issues, but I need some help, advice on what to do next.
We do have a neuro that knows Jake very well, so again he is just waiting on the report to be sent to him before we try medications.
Any help or information would be appreciated
Thanks
Christine