New here,

[3girlz]

Hi all,
I am new here but very excited about finding this forum. I have 3 awesome girls. They are 6, 4 and 17 months. My 4 yr old was diagnosed with autism- Pervasive Developmental Disorder (PDD)-not otherwise specified at 2 yrs old. She has went through a lot of therapy through early intervention and made huge gains in all areas but her behavioral and mood issues. She is now getting services through the public schools and they are only okay in comparison to EI. We recently (1 week ago) had her re- evaluated and got rediagnosed with Pervasive Developmental Disorder (PDD)-not otherwise specified and also diagnosed with ODD and ADHD. We were not at all surprised, but are now trying to take it all in and set up the best services and therapy for her. The doctor also thinks she has bi polar warning signs and childhood depression signs, so we are going to a psychiatrist soon.

The school says she is an angel there and says they were surprused she got Pervasive Developmental Disorder (PDD) again cus they thought she had outgrown it. (yeah cus that happens often, right! LOL) And they are telling me they disagree with the docs new diagnosis's. she has an IEP review meeting in a month and it is not gonna be fun. I am sure I will be posting a lot of questions to you all before then.

So, anyway I can not wait to meet you all!

Kelly

 

[BusynMember]

You do not outgrow Pervasive Developmental Disorder (PDD). Sounds like the teachers don't understand it at all. Yes, the kids make gains, but they still have it. My seventeen year old is proof of that. My guess is any ODD/ADHD behavior is due to the Pervasive Developmental Disorder (PDD). And bipolar? Careful. They misdiagnose Pervasive Developmental Disorder (PDD) for bipolar a lot. Been there/done that/have the shirt. I wouldn't let them give him heavy BiPolar (BP) medications until he is much older. What kind of professional diagnosed your child?
Good luck and welcome to the board

 

[3girlz]

You do not outgrow Pervasive Developmental Disorder (PDD). Sounds like the teachers don't understand it at all. Yes, the kids make gains, but they still have it. My seventeen year old is proof of that. My guess is any ODD/ADHD behavior is due to the Pervasive Developmental Disorder (PDD). And bipolar? Careful. They misdiagnose Pervasive Developmental Disorder (PDD) for bipolar a lot. Been there/done that/have the shirt. I wouldn't let them give him heavy BiPolar (BP) medications until he is much older. What kind of professional diagnosed your child?
Good luck and welcome to the board

I told the teacher that if she grew out of her diagnosis then she never should have had it in the first place.The doctor we saw was a developmental psychologist. She said it is hard to tweeze out if the ODD and ADHD are part of having Pervasive Developmental Disorder (PDD) or if they have taken on a life of their own. After observing my daughter Lilly and going over a billion questions on her behavior, she was confident her behaviors were more than just the Pervasive Developmental Disorder (PDD).

Actually the doctor said Pervasive Developmental Disorder (PDD) can confuse the warning signs for BiPolar (BP). So she wanted it watched for now. She said 4 was way too young for her to feel comfortable with that strong of a diagnosis. And she (and my hubby and I too) do not want to jump to medications. we do however want to get the depression checked out because her moods are so irratic and so much she is just so unhappy!

 

[SRL]

It sounds to me like your district isn't wanting to be responsible for continuing interventions. Was that discussed at all?

 

[3girlz]

It sounds to me like your district isn't wanting to be responsible for continuing interventions. Was that discussed at all?

yeah, I think that is where they are going with it. She has a current IEP and they have said she will not qualify to stay on her IEP because she is doing so well. I have an advocate and her behavioral specialist coming to the meeting, so hopefully that should help.

 

[SRL]

I'd encourage you to post on our Special Education board and run this by them. They may be able to give you some help in retaining services. Since she already has an IEP and you won't agree services should be dropped, I believe the school would have to prove via assessments that her disability isn't impacting her educationally. This obviously isn't a good time to drop an IEP, especially if she hasn't transitioned into kindergarten yet.

 

[Hound dog]

Welcome to the board!!

Travis is 24 and I can guarantee you they don't outgrow Pervasive Developmental Disorder (PDD). lol While he has progressed way beyond what we had even hoped, he is still very much Pervasive Developmental Disorder (PDD) and always will be. I'd take SRL's advice and visit the Special Education forum. Sounds like your district is trying to get out of providing services. Ours did it until the day the boy graduated. Never worked but didn't stop them from trying.

So glad you found us.

((hugs))