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<blockquote data-quote="WasInDenial" data-source="post: 12798" data-attributes="member: 3416"><p>A lot of people are suggesting finding root cause. We have tried multiple times. This has always been our goal, the question is how. Doing the same thing over and over and expecting different results is not rational. No less that 4 psychiatrists, 2 Neurodevelopmental specialists, untold SW and clinicians have seen him. They've all come back with essentially the same diagnosis's. Either Pervasive Developmental Disorder (PDD)-not otherwise specified or High-Functioning Autism (HFA).</p><p></p><p>To clarify, essentially here's a more detailed history of how we got here in a nutshell. It seems as if some people think we haven't had him seen by the right people, or enough people. Maybe he hasn't seen the right people, but I don't know how to find them.</p><p></p><p>1. difficult child doesn't do well starting in kindergarten, but later in public school 1-3 grade. No intellect issues, he's a little professor and can disacuss Quantum Physics with you now at 12 coherently. Issue is totally behavior and attention and perseverence. Won't do steps A,B,C,D to get to E. Wants to go straight to E. Public school expresses concern. Father dismisses symptoms, mother thinks there might be a problem.</p><p></p><p>2. Public school want to engage CTS. After resisting, parents(read father, mother was already for it) okay it. CTS sends difficult child for full workup, SW, Neuro, Psychologigical, Psychiatric. We can't complain about our school systems well meaning intent to help.</p><p></p><p>3. diagnosis after this is ADHD. Placement in alternative school accpeted and he's put on various stimulants as the road is travelled as indicated in signature. </p><p></p><p>4. Starts out well in new school. However starts being interested in various fantasy worlds. Father: "Whats wrong with that. I loved Lord of the Rings and Star Trek. I wasn't put on medications for it." Father resists initial desire to treat this this with anti-psychotics. But psychiatrist convinces parents he's depressed. So we go ahead and start Prozac. No material change in school work. Still will only work on stuff in school he's interested in. Avrious changes over first two years.</p><p></p><p>6. 3 - 6 months later starts becoming progressively more defiant. Refuses more nad more homework. Starts getting more and more obsesssed with fantasy worlds. Constantly challenging everyone with why can't this world be more perfect like the fantasy worlds he's interested in.</p><p></p><p>Throughout childhood Father is disciplinarian for both kids. I am the heavy. No doubt about it. Former Military and boot camp did me right. Figures strict discipline with consequences will address discipline and behavior issues like it did fo me. Father also smart enough to know that violence begets violence and I do not beat my kids and rarely spanked them as youngsters. Discipline is mainly achieved by grounding and/or removal of access to their cherished toys, access to compter, etc. difficult child becomes more belligerent and recalcitrant, loses more toys.</p><p></p><p>7. So refusing schoolwork difficult child loses more toys. Has limited effect. He says it's boring. He does the absolute minimum to get access to his toys/DS/Gameboy/Computer. psychiatrist puts him on AP Risperdal for what he says is disorganized thinking.</p><p></p><p>8. After a few months, father suggests to school (for the ninth time) that he's bored in school. Please give him harder work to interest him. If I discuss advanced topics with him he's fascinated. School says no, not until he complies with homework/behavior requirements. Father suggests just maybe thats why he's being non-compliant, because he's bored. Risperdal not working psychiatrist convinces switch to Abilify. Still on Concerta and Prozac.</p><p></p><p>9. Situation gets worse. Abilify causing tremors. School finally accedes and puts him in different (harder) class. By this time his refusal is full blown though. Too little too late. Won't do his homework, won't do anything unless I allow him access to his toys/fantasy worlds. Has tried to turn tables completely. He has always been a master manipulator. Even father (not a psychiatrist) sees clear anti-social behaviors, disorganized thinking, etc but nothing is working to get him out of this. He sliding in to this insiduously.</p><p></p><p>10. Father suggests to psychiatrist that maybe all these neuroleptics and AD and stimulants have royally screwed up his brain chemistry. Unless he has a better idea, would like to wean him off them and see what's really there. psychiatrist says ok, do it slowly, gives us schedule. We start weaning him off. By this past Christmas he's off all of them. Problem no better over holidays. Barely made it through Holiday vacation.</p><p></p><p>11. Goes back to school after break and is suspended almost immediately for behavior. difficult child can't explain why he did what would appear to anyone to be royally stupid thing. Couldn't he predict what would happen. At this point difficult child doesn't care. School won't take him back and tells CTS he needs another placement. We go through the whole Neuro/psychiatric workups for re-evaluation of new school. </p><p></p><p>12. He becomes completely unmanageable for my wife and even marginally manageable if I'm there. Escalates to an emergency last Wednesday and we take him to hospital. They admit him. Current psychiatrist asks them to evaluate him for a second opinion. We went to this hospital becuase we hoped we could get second opinion. Father comes out of denial there is a major root cause even if they don't know what it is, and more importantly that his parenting style won't work for this difficult child and educates self to change approach before he's released.</p><p></p><p>13. They put him back on AD's and AP's. This makes sense he's doing better becuase the brain got used to them there and replacing them makes him better for the short term. They were taken away, the brain chemistry went majorly awry. This restabilizes it. But it's still not clear there is an true undrlying condition, a true root cause that he needed them originally.</p></blockquote><p></p>
[QUOTE="WasInDenial, post: 12798, member: 3416"] A lot of people are suggesting finding root cause. We have tried multiple times. This has always been our goal, the question is how. Doing the same thing over and over and expecting different results is not rational. No less that 4 psychiatrists, 2 Neurodevelopmental specialists, untold SW and clinicians have seen him. They've all come back with essentially the same diagnosis's. Either Pervasive Developmental Disorder (PDD)-not otherwise specified or High-Functioning Autism (HFA). To clarify, essentially here's a more detailed history of how we got here in a nutshell. It seems as if some people think we haven't had him seen by the right people, or enough people. Maybe he hasn't seen the right people, but I don't know how to find them. 1. difficult child doesn't do well starting in kindergarten, but later in public school 1-3 grade. No intellect issues, he's a little professor and can disacuss Quantum Physics with you now at 12 coherently. Issue is totally behavior and attention and perseverence. Won't do steps A,B,C,D to get to E. Wants to go straight to E. Public school expresses concern. Father dismisses symptoms, mother thinks there might be a problem. 2. Public school want to engage CTS. After resisting, parents(read father, mother was already for it) okay it. CTS sends difficult child for full workup, SW, Neuro, Psychologigical, Psychiatric. We can't complain about our school systems well meaning intent to help. 3. diagnosis after this is ADHD. Placement in alternative school accpeted and he's put on various stimulants as the road is travelled as indicated in signature. 4. Starts out well in new school. However starts being interested in various fantasy worlds. Father: "Whats wrong with that. I loved Lord of the Rings and Star Trek. I wasn't put on medications for it." Father resists initial desire to treat this this with anti-psychotics. But psychiatrist convinces parents he's depressed. So we go ahead and start Prozac. No material change in school work. Still will only work on stuff in school he's interested in. Avrious changes over first two years. 6. 3 - 6 months later starts becoming progressively more defiant. Refuses more nad more homework. Starts getting more and more obsesssed with fantasy worlds. Constantly challenging everyone with why can't this world be more perfect like the fantasy worlds he's interested in. Throughout childhood Father is disciplinarian for both kids. I am the heavy. No doubt about it. Former Military and boot camp did me right. Figures strict discipline with consequences will address discipline and behavior issues like it did fo me. Father also smart enough to know that violence begets violence and I do not beat my kids and rarely spanked them as youngsters. Discipline is mainly achieved by grounding and/or removal of access to their cherished toys, access to compter, etc. difficult child becomes more belligerent and recalcitrant, loses more toys. 7. So refusing schoolwork difficult child loses more toys. Has limited effect. He says it's boring. He does the absolute minimum to get access to his toys/DS/Gameboy/Computer. psychiatrist puts him on AP Risperdal for what he says is disorganized thinking. 8. After a few months, father suggests to school (for the ninth time) that he's bored in school. Please give him harder work to interest him. If I discuss advanced topics with him he's fascinated. School says no, not until he complies with homework/behavior requirements. Father suggests just maybe thats why he's being non-compliant, because he's bored. Risperdal not working psychiatrist convinces switch to Abilify. Still on Concerta and Prozac. 9. Situation gets worse. Abilify causing tremors. School finally accedes and puts him in different (harder) class. By this time his refusal is full blown though. Too little too late. Won't do his homework, won't do anything unless I allow him access to his toys/fantasy worlds. Has tried to turn tables completely. He has always been a master manipulator. Even father (not a psychiatrist) sees clear anti-social behaviors, disorganized thinking, etc but nothing is working to get him out of this. He sliding in to this insiduously. 10. Father suggests to psychiatrist that maybe all these neuroleptics and AD and stimulants have royally screwed up his brain chemistry. Unless he has a better idea, would like to wean him off them and see what's really there. psychiatrist says ok, do it slowly, gives us schedule. We start weaning him off. By this past Christmas he's off all of them. Problem no better over holidays. Barely made it through Holiday vacation. 11. Goes back to school after break and is suspended almost immediately for behavior. difficult child can't explain why he did what would appear to anyone to be royally stupid thing. Couldn't he predict what would happen. At this point difficult child doesn't care. School won't take him back and tells CTS he needs another placement. We go through the whole Neuro/psychiatric workups for re-evaluation of new school. 12. He becomes completely unmanageable for my wife and even marginally manageable if I'm there. Escalates to an emergency last Wednesday and we take him to hospital. They admit him. Current psychiatrist asks them to evaluate him for a second opinion. We went to this hospital becuase we hoped we could get second opinion. Father comes out of denial there is a major root cause even if they don't know what it is, and more importantly that his parenting style won't work for this difficult child and educates self to change approach before he's released. 13. They put him back on AD's and AP's. This makes sense he's doing better becuase the brain got used to them there and replacing them makes him better for the short term. They were taken away, the brain chemistry went majorly awry. This restabilizes it. But it's still not clear there is an true undrlying condition, a true root cause that he needed them originally. [/QUOTE]
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