New Poster! Have Question for you?

Mrs Smith

New Member
Hi Josie,

I cried when I read your post....that list of negativities is practically my difficult child's word for word. It really does tear you apart doesn't it. There have been a few times he has stormed out of the house, and my husband has said let him go, but I've always managed to get him to come back (chasing him up the road, fortunately domestic disturbances go unnoticed around here LOL)He has no where to go, leaves without mney, keys or a phone. I don't want him walking the streets in that frame of mind.

My DS is intelligent, good looking, tall, slim, and has a very wicked dry sense of humour. The way that I, and the rest of the world see him is a universe apart from the way he sees himself. All he can see is the stuff he CAN'T do - not the millions of things he can and does do better than anyone else.

He also uses 'retard' which is another popular term of abuse among UK teenagers!

You get the verbal garbage though? What triggers it usually?

Regards

Triggers are video games (not being able to win), forgetting things, losing things, any correction by us (we're "patronizing him"), friend not calling when he said he would, bumping into things, dropping things, homework. Other days it could be anything - like his socks not lined up right or being out of his favorite cookies.

Some of this is magnified by puberty but I think the thing that frustrates him the most is his inconsistent performance - some days he's on and some days he's not. Today he was on - I didn't have to nudge him or remind him to get ready for school, he was organized and finished early. Other days, I have to practically hold his hand and dress him. I've always said the most consistent thing about him was his inconsistency!

Here's a good article on dyspraxia you might be interested in - it's much more complex than motor control, there's a cognitive piece to it also.

https://web.archive.org/web/20110723124424/http://spectrumcenter.net/dyspraxia.html
 
<< Triggers are video games (not being able to win), forgetting things, losing things, any correction by us (we're "patronizing him"), friend not calling when he said he would, bumping into things, dropping things, homework. Other days it could be anything - like his socks not lined up right or being out of his favorite cookies.>>

Sorry I couldn't make the quotes box work.... Oh pretty much the same stuff as my difficult child. I'm interested because some of it seems so trival to me...the not being able to find stuff, forgetting things, homework etc could be so easily eased for him by a degree of forward planning, which over the years I have tried sort out, not even planning for him....you know stuff you do for them. The kind of 'one thing at a time' guidance they give you for dyspraxia - but difficult child will not have any of it....

I'd add to the list inanimate objects not working properly - like computers (arrgh) his easy child is called the 'Computer that Ruined Christmas' as it arrived a couple of days before Xmas
last year and and went wrong Christmas day, and he spent a week lying face down in a darkened room (practically) as there was nothing that could be done to fix it until the suppliers started work after the holiday break. He obsessively formatted the hard drive and reinstalled everything until I took the thing away from him, as it obviously needed an engineer to sort it out!

We have good days too, when he is up out and apparently happy, but it can change in the blink of an eye. Like I said before after he has had a bad episode he is very touchy feely with me, for a few days, he comes to find me and does stuff like lay his head on me, I am allowed to hug him at those times, but not allowed to touch his head! Don't even get me started on haircuts...
 

Mrs Smith

New Member
I'd add to the list inanimate objects not working properly - like computers (arrgh) his easy child is called the 'Computer that Ruined Christmas' as it arrived a couple of days before Xmas
last year and and went wrong Christmas day, and he spent a week lying face down in a darkened room (practically) as there was nothing that could be done to fix it until the suppliers started work after the holiday break. He obsessively formatted the hard drive and reinstalled everything until I took the thing away from him, as it obviously needed an engineer to sort it out!

We have good days too, when he is up out and apparently happy, but it can change in the blink of an eye. Like I said before after he has had a bad episode he is very touchy feely with me, for a few days, he comes to find me and does stuff like lay his head on me, I am allowed to hug him at those times, but not allowed to touch his head! Don't even get me started on haircuts...

LOL "Computer that Ruined Christmas" Not funny at the time of course, poor thing. Mine takes weeks to recover too. You're in good company. Lots of us have kids like this and can relate.

Re: haircuts - they said in that article on dyspraxia that the motor system was dependent on the sensory system. difficult child has problems in both areas. Has your son ever been seen by an occupational therapist for sensory integration therapy? A lot of parents will tell you that if you do any one thing, Occupational Therapist (OT) is the best bang for your buck. Getting him to cooperate at this age is the challenge. I feel your pain!
 

Marguerite

Active Member
I have cut everybody's hair in our family, but I always made a mess of the boys. It's impossible trying to trim a moving target - the feel of the wisps of hair as they fall (and this can't be avoided when trimming the fringe) would make them flinch, the scissors would slip and the fringe would end up crooked.

With difficult child 1, I was eventually able to trim him acceptably, then I bought a new pair of hair clippers. I buzz cut his hair and it looked great. It was the last time his hair was cut, for five years.
difficult child 1 likes animé and goes to every convention he can, usually in costume. He also goes to the sci-fi/fantasy conventions, also in costume. And a lot of the characters he likes have long hair.
The real fun began when he wanted to dress up as an animé character with blue hair - and it had to be just the right shade of blue. To do this, he had to bleach his hair - or rather, I did. He complained the whole time that it was burning his scalp - it was, too - and swore like a trooper. He put up with it, though, because he needed bleached hair for the blue dye to look blue, and not muddy brown. It looked fairly awful but we planned a buzz cut after the convention, which would have looked interesting as it grew out, with bleached tips and darker roots.
In the end his hair was so brassy, it looked fairly terrible, so we put the blue in as soon as we could.
You know what happens when you put blue over yellow? It was a lovely emerald green... and what it did to the sheets! I consoled myself that if it was coming out of his hair so easily, it would eventually come out of the sheets with the same number of washes.

But he didn't let me cut it afterwards. He ended up with two-tone hair, which he has finally allowed me to trim off. His hair is almost waist-length but he wears it tied back just about all the time. When he goes to sci-fi conventions, he wears a Star Wars Jedi outfit he had made in black, goes as a Sith, complete with professional-looking light saber. He's 23, still lives like a kid with all the leisure in the world, even though he's looking for a job.

difficult child 3 - I finally gave up, we take him to the same budget hairdresser I now see. And they do a great job. I figured a mob that specialises in cutting hair cheaply, should be experienced in trimming difficult kids. It took some cajoling to begin with, but they do often behave better for a stranger.
We buzz-cut difficult child 3's hair five years ago because he had ticks all through his scalp (everywhere else too). We needed him scalped so we could find the bloodsuckers. And he looked awful - he picks at scabs and is really skinny so he looked like a concentration camp inmate.

Somewhere we have a photo of difficult child 1 getting his hair cut - I meant to dig it out for his 21st.

Here's a word of advice - always make sure you have a store of such photos and hide the negatives, they make really good blackmail material.

Marg
 
He has seen an Occupational Therapist (OT) but the last one he saw, was supposed to do a school visit to talk to them about the assistance they could give him, she was shocked that he was doing so well, when he scored so badly in the motor skills tests.

He's developed a lot of coping strategies. You rarely see him using scissors, and he NEVER does drawings!!

The chances of me getting him refered at this point are zilch. I can't afford anything privately. My best bet as always is usually to find a book, and put into practice as much as I can myself!

Regards
 
LOL! I do the hair cuts in this house too.

DS doesn't like me doing it, but in the past he'd rather I did it than risk having his ear cut off by a barber who doesn't know that at any given moment he is likely to duck to one side screaming OW!

At the moment he is growing a mop that is starting to go a bit corkscrew curls....he is likely to end up looking like Marc Bolan (T Rex ?) I keep finding little bits he's hacked off in the bathroom bin, which I'm sure isn't helping 'the look'

He hates washing his hair, hates being asked/told to wash it and has to be harassed into having a bath!

Dying hair at home is fun (NOT) I have two girls so I know ALL about colours. The worst was when my nearly blonde daughter decided she wanted to be GOTH. She dyed her hair black. She was the only person I've ever know have blonde roots come through LOL! She got sick of it pretty quick too and I refused to have any part of stripping the colour out - A job for a professional in my humble opinion. It cost her a fortune!

Your son's Jedi outfit sounds great! When I grow up I'd like to be a Jedi Master so I can relate

Regards
 

TerryJ2

Well-Known Member
Hi Rabbits, nice to meet you.
You've gotten some really good comments here. Wish I could add something, but I can lend support because so much of what you talk about sounds familiar!
I was convinced for a while that my son was an aspie but he had changed over the past yr.
Your son sounds more like an aspie than mine, but testing and time will tell.
LOVE the comment about spastic! And the girl friend he brought home who didn't like his room and his rats! Those two items are "normal," lol!

LOL about your daughters dyeing their hair. My easy child tried it by herself once, and instead of using the teeny tiny comb that came with-the kit, she smooshed it in a clump down the center of her scalp, and ended up looking like a skunk! We had to give her a side ponytail the next a.m. and take her to a professional the following afternoon.

Kids are fun. Or not. :smile:
 
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