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New to this and feeling very overwhelmed!!
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<blockquote data-quote="buddy" data-source="post: 506770" data-attributes="member: 12886"><p>Hi there and welcome to the CD Board! It is pretty hard to accept we dont catch every little issue to help support our kids but we simply can't. The fact that you have a school with folks who really DO see it, WOW that is a huge deal. I wish they had clued you into their thoughts long ago, but sounds like your psychiatric doesn't get it.... Many dont. These are just folks who train in their specialty areas and if they don't really study the full spectrum of autism, they often miss it. No worries, just find someone who does get it.</p><p></p><p>From what you are saying it is not even a close call (asperger's) and that is a huge step forward! There are lots of things to get started on and for sure start with an IEP.... for one thing, he needs individual support to navigate the rules, social landscape and changing demands placed on kids for all things not specific subject related (for him, for now)... like organization, direction following, etc.</p><p></p><p>For another thing, as he gets older, it is common to find more and more staff who, without it written on a legal document, will hold him to a standard he may not be able to achieve without some support. </p><p></p><p>Aspergers is a life long issue. But that does not mean who he is today he will be as an adult. he has ability to learn and the potential to live a very meaningful life.... and depending on his level of functioning, he will likely live a mostly independent life. But he does need very specific treatment and learning methods to get there, and as you already have found out, just doing reward stickers and consequence/punishment methods does not work. As you read up on more and more sites for Asperger's you will see there is a lot of hope in this. (though, I for sure--and I can bet most others here---bawled and still have moments like that in grief over MY child having to deal with this.)</p><p></p><p>Do they already have an assessment meeting planned so you can sign off on getting him assessed for an IEP? IF not, just write up a letter to send registered mail/return receipt asking for a complete evaluation and any IEP follows you anywhere in the USA. Save time and headaches getting it done so that they are legally obligated to support him from the second he gets to the new school. </p><p>(if you have time...but you can get it started anyway).</p><p></p><p>Do NOT be too hard on yourself...lots of professionals have been watching him and not saying it so why should you have caught that? But you know now.... so go ahead and cry...it is part of the process but also remind yourself that your son is so blessed to have a mom who doesn't give up and is even here on this board looking for support! </p><p></p><p>HUGS and understanding..... Dee</p></blockquote><p></p>
[QUOTE="buddy, post: 506770, member: 12886"] Hi there and welcome to the CD Board! It is pretty hard to accept we dont catch every little issue to help support our kids but we simply can't. The fact that you have a school with folks who really DO see it, WOW that is a huge deal. I wish they had clued you into their thoughts long ago, but sounds like your psychiatric doesn't get it.... Many dont. These are just folks who train in their specialty areas and if they don't really study the full spectrum of autism, they often miss it. No worries, just find someone who does get it. From what you are saying it is not even a close call (asperger's) and that is a huge step forward! There are lots of things to get started on and for sure start with an IEP.... for one thing, he needs individual support to navigate the rules, social landscape and changing demands placed on kids for all things not specific subject related (for him, for now)... like organization, direction following, etc. For another thing, as he gets older, it is common to find more and more staff who, without it written on a legal document, will hold him to a standard he may not be able to achieve without some support. Aspergers is a life long issue. But that does not mean who he is today he will be as an adult. he has ability to learn and the potential to live a very meaningful life.... and depending on his level of functioning, he will likely live a mostly independent life. But he does need very specific treatment and learning methods to get there, and as you already have found out, just doing reward stickers and consequence/punishment methods does not work. As you read up on more and more sites for Asperger's you will see there is a lot of hope in this. (though, I for sure--and I can bet most others here---bawled and still have moments like that in grief over MY child having to deal with this.) Do they already have an assessment meeting planned so you can sign off on getting him assessed for an IEP? IF not, just write up a letter to send registered mail/return receipt asking for a complete evaluation and any IEP follows you anywhere in the USA. Save time and headaches getting it done so that they are legally obligated to support him from the second he gets to the new school. (if you have time...but you can get it started anyway). Do NOT be too hard on yourself...lots of professionals have been watching him and not saying it so why should you have caught that? But you know now.... so go ahead and cry...it is part of the process but also remind yourself that your son is so blessed to have a mom who doesn't give up and is even here on this board looking for support! HUGS and understanding..... Dee [/QUOTE]
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