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Not Asking "Why" Enough?
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<blockquote data-quote="Josie" data-source="post: 78635" data-attributes="member: 1792"><p>I would do the blood test and then, no matter what it says, try the diet, at least gluten free and then think about adding casein free. The blood tests and even the endoscopy do not always detect a gluten intolerance. Celiac disease by definition includes damage to the intestine but it is possible gluten is causing her problems even if there is no intestinal damage. There is a known link between neurological problems and gluten.</p><p></p><p>My 2 daughters and I are all girlfriend/CF and have been for about 1 1/2 years. One daughter had the blood tests several times and they were always negative. I did an alternative test on my own for her and it showed gluten intolerance. So then I tested former difficult child and myself. We were positive also. </p><p></p><p>I got on the diet thinking I would do it around my kids and eat whatever I wanted when I was out. I immediately saw a difference in how I felt. I thought I had ADD, and an auditory processing disorder. I was also on an a/d and always tired and irritable. Within 2 days, I could tell I would never eat gluten again on purpose. I'm off my a/d and all of those problems went away. Also I noticed that I had a brain fog that lifted when I stopped eating gluten. </p><p></p><p>Former difficult child had a diagnosis of ODD and Depresssion. She was on 20 mg of Lexapro and we were thinking of adding Seroquel or a mood stabilizer. She was still out of control. Instead, we started the girlfriend/CF diet and she is now down to 2.5 mg of Lexapro and doing great. We have tapered her off very slowly but we are planning on getting rid of the last bit starting in Oct. The only time she acts like that now is when she has some gluten or some milk.</p><p></p><p>Based on my experience with myself and my kids, I really believe a lot of kids with behaviour or learning problems have a gluten intolerance. Even some of the celiac experts think that 25% of the general population has gluten intolerance, separate from celiac disease. Celiac disease is thought to affect about 1% of the population with 97% of them undiagnosed.</p><p></p><p>I make sure I send my kids with lots of good girlfriend/CF food. Their friends like my cooking. Yes, they are different from everyone else, but difficult child was different before, too, when she would act the way she did.</p><p></p><p>An excellent source of information about testing and following the girlfriend diet is <a href="http://www.glutenfreeforum.com." target="_blank">http://www.glutenfreeforum.com.</a> A lot of celiacs are also casein intolerant so there is information about that, too.</p></blockquote><p></p>
[QUOTE="Josie, post: 78635, member: 1792"] I would do the blood test and then, no matter what it says, try the diet, at least gluten free and then think about adding casein free. The blood tests and even the endoscopy do not always detect a gluten intolerance. Celiac disease by definition includes damage to the intestine but it is possible gluten is causing her problems even if there is no intestinal damage. There is a known link between neurological problems and gluten. My 2 daughters and I are all girlfriend/CF and have been for about 1 1/2 years. One daughter had the blood tests several times and they were always negative. I did an alternative test on my own for her and it showed gluten intolerance. So then I tested former difficult child and myself. We were positive also. I got on the diet thinking I would do it around my kids and eat whatever I wanted when I was out. I immediately saw a difference in how I felt. I thought I had ADD, and an auditory processing disorder. I was also on an a/d and always tired and irritable. Within 2 days, I could tell I would never eat gluten again on purpose. I'm off my a/d and all of those problems went away. Also I noticed that I had a brain fog that lifted when I stopped eating gluten. Former difficult child had a diagnosis of ODD and Depresssion. She was on 20 mg of Lexapro and we were thinking of adding Seroquel or a mood stabilizer. She was still out of control. Instead, we started the girlfriend/CF diet and she is now down to 2.5 mg of Lexapro and doing great. We have tapered her off very slowly but we are planning on getting rid of the last bit starting in Oct. The only time she acts like that now is when she has some gluten or some milk. Based on my experience with myself and my kids, I really believe a lot of kids with behaviour or learning problems have a gluten intolerance. Even some of the celiac experts think that 25% of the general population has gluten intolerance, separate from celiac disease. Celiac disease is thought to affect about 1% of the population with 97% of them undiagnosed. I make sure I send my kids with lots of good girlfriend/CF food. Their friends like my cooking. Yes, they are different from everyone else, but difficult child was different before, too, when she would act the way she did. An excellent source of information about testing and following the girlfriend diet is [url="http://www.glutenfreeforum.com."]http://www.glutenfreeforum.com.[/url] A lot of celiacs are also casein intolerant so there is information about that, too. [/QUOTE]
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