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<blockquote data-quote="Hound dog" data-source="post: 478721" data-attributes="member: 84"><p>Susie, saying he didn't see anything on the eeg and that he didn't think it was brain related didn't necessarily mean the man doesn't believe you. (or did he come out and say that?)</p><p></p><p>It used to be long ago docs had no issues with admitting they didn't hold all the answers. Most were humble enough to be happy with the answers they did have to offer. Medicine has made great advances to be sure, and some not quite as great as they'd have you to believe. But somewhere along the line........most docs lost the ability to admit they still don't have all the answers. Not every disease or disorder of the human body has been discovered and cured or even been made treatable. Add in to this that I'm sure new diseases and disorders are evolving right along with us, which makes it even harder.</p><p></p><p>Jess's symptoms are very very real, and very scary. It is clear there is something going on there, regardless of the results of certain tests at certain times ect. It's possible they don't have the means to "test" for what she has and it doesn't show up on tests we have at this point, be it neuro test, lab test ect. This doesn't mean she doesn't have her symptoms, doesn't mean there is not a disease or disorder process at work. What it very well may mean is that whatever is going on with her, at this point in time they don't have the knowledge of what it is or diagnosis the possible causes.</p><p></p><p>There is no logical medical knowledge to explain how and why Travis survived his birth alone. Equally, there is no explanation as to how he survived and did as well as he has done. Obviously he did, but it's the how and why part that has left them stumped because other children didn't. His odds were a million to one, out of those odds the "one" that would make it would live their lives in a vegetative state. It just doesn't make sense with what they know at this point in time. Doesn't mean that 50 yrs from now some doctor will say Oh, well see it was like this.......and then this happened because of this......Know what I mean?? </p><p></p><p>If this neuro thinks outside the box and is willing to work with you and Jess, honestly? I'd stick it out with him a while. If he's willing to give it his best shot, I'd let him try.</p><p></p><p>I know it's been a long haul for you and Jess, and you know I totally get your disappointment and frustration. Saying that, I'd also understand if you just feel like this guy is not the answer. I was just putting that out there for you to think about. (all the while cursing under my breath because I was hoping something would show up on that eeg)</p><p></p><p>(((hugs)))</p></blockquote><p></p>
[QUOTE="Hound dog, post: 478721, member: 84"] Susie, saying he didn't see anything on the eeg and that he didn't think it was brain related didn't necessarily mean the man doesn't believe you. (or did he come out and say that?) It used to be long ago docs had no issues with admitting they didn't hold all the answers. Most were humble enough to be happy with the answers they did have to offer. Medicine has made great advances to be sure, and some not quite as great as they'd have you to believe. But somewhere along the line........most docs lost the ability to admit they still don't have all the answers. Not every disease or disorder of the human body has been discovered and cured or even been made treatable. Add in to this that I'm sure new diseases and disorders are evolving right along with us, which makes it even harder. Jess's symptoms are very very real, and very scary. It is clear there is something going on there, regardless of the results of certain tests at certain times ect. It's possible they don't have the means to "test" for what she has and it doesn't show up on tests we have at this point, be it neuro test, lab test ect. This doesn't mean she doesn't have her symptoms, doesn't mean there is not a disease or disorder process at work. What it very well may mean is that whatever is going on with her, at this point in time they don't have the knowledge of what it is or diagnosis the possible causes. There is no logical medical knowledge to explain how and why Travis survived his birth alone. Equally, there is no explanation as to how he survived and did as well as he has done. Obviously he did, but it's the how and why part that has left them stumped because other children didn't. His odds were a million to one, out of those odds the "one" that would make it would live their lives in a vegetative state. It just doesn't make sense with what they know at this point in time. Doesn't mean that 50 yrs from now some doctor will say Oh, well see it was like this.......and then this happened because of this......Know what I mean?? If this neuro thinks outside the box and is willing to work with you and Jess, honestly? I'd stick it out with him a while. If he's willing to give it his best shot, I'd let him try. I know it's been a long haul for you and Jess, and you know I totally get your disappointment and frustration. Saying that, I'd also understand if you just feel like this guy is not the answer. I was just putting that out there for you to think about. (all the while cursing under my breath because I was hoping something would show up on that eeg) (((hugs))) [/QUOTE]
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