As a newbie, I have been reading through the various forums, looking for validation about my own experiences. My daughter is 15 now but what I am reading here takes me right back to the day. I struggled with finding support or proper medical advice mostly because I was overwhelmed and exhausted trying to make things okay and there wasn't alot of info at the time. But things are better these days. Insist, be an advocate for your kid. Don't let the GP blow you off, insist on getting second opinions. I wish I had of done that.
And.. structure and schedule makes things better. Ten minute warnings help with the big trouble times - transitions. Transitions can be, changing activities, having dinner, going to bed, going to school, someone coming home, the kid going out, even TV programs ending... Transitions are hard for all kids but seem to really impact our guys and gals. So, start warning in advance, "Dad will be home in 10 minutes... did you want to do anything for him when he comes home? Surprise him, show him a picture, make him a tea?" Warn and distract. Try to reinforce that transitions can be fun. If he says no... let it go. Warn at five minutes, at three minutes and then right at the moment. They seem not to notice but you will see a difference.
And school. Imagine having to leave behind all your safety, all the things and people that make you feel all is right in the world and then you go to a strange place, where people don't understand you, expect you to be something your not, somewhere where your old buddies from daycare don't like you, avoid you and some strange teacher is telling you what to do and she may not seem to like you either. Its a hard thing for the kids. If you can see if you can spend some time with him before and during the beginning of the class. Get info for the teacher and try to educate her/him. Let them know its not personal, he has a mental condition and (I used turettes as an example)that when he feels frustrated, stimulated, he gets mad - has a fit, like turettes. Let them know that they should not react to him, that once he is calm that problem solving can include the group. ie: the teacher says, "wow that was kind of hard for me. When Johnny gets mad like that I have really practise patience and wait until he can talk to me" Does anyone else ever get so mad they can't talk it out or sort it out?" "That must be kind of hard for Johnny" "what are some ideas about how we can help him?" If your son feels supported he will work with them, peer pressure is amazing. But if he feels like the outsider, the bad one, he will protect himself and that isn't often positive.
Go to your Parents Advisory Council and ask if there is any funds for speakers, educators who deal with these issues. Talk to the principal about starting a support group, I guarantee you there are other parents feeling alone out there.
And... I hope I didn't overwhelm you. Your probably exhausted already.. this website really helped me check it out.
http://www.klis.com/chandler/pamphlet/oddcd/oddcdpamphlet.htm