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Osteo...stuff and FORTEO
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<blockquote data-quote="susiestar" data-source="post: 588651" data-attributes="member: 1233"><p>Before taking ANY bone building medications have your vit D level checked. THe problem that I have with D is very rare and in fact most docs don't know that it can even happen. If you do not have enough D in your body, the bone building medications don't work and I have been told it is incredibly painful. My rheumy had a patient with low D who couldn't seem to tolerate any source of D and she insisted on trying a bone building medication. Her husband called 911 when she started screaming in agony. She screamed for hours and pain medications didn't seem to help much (bone pain is very hard to treat I have been told). They put her into a medically induced coma when she was still screaming 12 hrs and enough pain medications, muscle relaxers and valium to sedate a horse later. They tried to bring her out in 3 days and she was screaming before she was fully conscious so she ended up in that coma for six days. She took a weekly form of the bone building medications.</p><p></p><p>I saw the doctor a few mos after this had happened and he warned me to not ever try a long acting form and be ready for awful things if I tried them at all. He had consulted the pharmaceutical co and the FDA and they were all shocked and worried. There is a group working on Vit D issues and the doctor sent my records to see if they could help. Near as they can figure, my body has had little vit D most of my life and has no idea what to do with it so it rejects it. It means I have to be ready for bad things, and to be careful.</p><p></p><p>Ask the doctor if it is possible to fix the fractures with cement or stabilizers. Apparently they exist. It is what I have been told to call the doctor about if I get sudden awful back pain. My rheumy and this group studying vit D say they are finding more people with the problem that I have, and it no one has any clue how it happens or what to do about it. (Always what you want to hear from doctors. NOT.)</p><p></p><p>ust be careful. Find out what it does, and make sure you have enough calcium and vit D in your body to work wth the medications. After that, go with your instincts. Osteo is no fun at all.</p></blockquote><p></p>
[QUOTE="susiestar, post: 588651, member: 1233"] Before taking ANY bone building medications have your vit D level checked. THe problem that I have with D is very rare and in fact most docs don't know that it can even happen. If you do not have enough D in your body, the bone building medications don't work and I have been told it is incredibly painful. My rheumy had a patient with low D who couldn't seem to tolerate any source of D and she insisted on trying a bone building medication. Her husband called 911 when she started screaming in agony. She screamed for hours and pain medications didn't seem to help much (bone pain is very hard to treat I have been told). They put her into a medically induced coma when she was still screaming 12 hrs and enough pain medications, muscle relaxers and valium to sedate a horse later. They tried to bring her out in 3 days and she was screaming before she was fully conscious so she ended up in that coma for six days. She took a weekly form of the bone building medications. I saw the doctor a few mos after this had happened and he warned me to not ever try a long acting form and be ready for awful things if I tried them at all. He had consulted the pharmaceutical co and the FDA and they were all shocked and worried. There is a group working on Vit D issues and the doctor sent my records to see if they could help. Near as they can figure, my body has had little vit D most of my life and has no idea what to do with it so it rejects it. It means I have to be ready for bad things, and to be careful. Ask the doctor if it is possible to fix the fractures with cement or stabilizers. Apparently they exist. It is what I have been told to call the doctor about if I get sudden awful back pain. My rheumy and this group studying vit D say they are finding more people with the problem that I have, and it no one has any clue how it happens or what to do about it. (Always what you want to hear from doctors. NOT.) ust be careful. Find out what it does, and make sure you have enough calcium and vit D in your body to work wth the medications. After that, go with your instincts. Osteo is no fun at all. [/QUOTE]
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