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<blockquote data-quote="Thinking Outside the Box" data-source="post: 312500" data-attributes="member: 8210"><p><span style="font-family: 'Comic Sans MS'"><span style="color: seagreen">I apologize if I seem to not know my way around these forum things, as I am new to this and even having to guess on some of the abbreviations I find in others posts. THANK YOU, for all of advice, questions, and support from everyone that has already responded to my post. I haven't figured out how and if I can respond to each of your replies, so I am going to have to do this in one big one, sorry. </span></span></p><p><span style="font-family: 'Comic Sans MS'"><span style="color: seagreen">First, let me say that I will be reading the Explosive Child; I just came across the name of the book yesterday in one of the posts I was reading! Can't wait to get my hand on it! Secondly, my son's history of doctors and therapists has sadly been a waste of time. We have come across more cold doctors and therapists since we have started on this road. Just changed pediatricians again 2 months ago and she is disgusted with the fact so many simple tests were never done. She immediately sent us to the lab after his 1st appointment. for allergy, gluten, growth plate x-rays, gave us a referral for an asap appointment. with a pediatrician. endo. Monday, I will be picking up the referral for a genetisist. We are also currently keeping a food diary for a few weeks so Brenden can be seen by a pediatrician. nutritionist who wants to check for intolerances, NOT allergies, to certain things in his diet. Brenden has just started therapy again, but was in a day program for part of the summer. Sadly, I go to therapy with-out my husband, because he feels that even though our son has such severe issues, he believes that he can control himself. My husband believes our son has challenges academically and cognitively, but the rest of it he feels is just to keep the health industry in business. He and I are def. not on the same page, but with that said, after having been married to him now for all these years, my husband seems to be a much milder version of my son and I believe he actually has difficulty understanding the issues at hand. </span></span></p><p><span style="font-family: 'Comic Sans MS'"><span style="color: seagreen">The questions regarding medications, well, I am sure that I am not much different than most of you. I don't like them, but feel that for some kids, sometimes, yes, they are necessary. Vyvanse does work somewhat for Brenden; with-out it he is a train wreck. It does lessen the severity of some of his behaviors, but does not completely dissolve them. Geodon has helped his communication skills. Before, he could never clear his mind to answer the most basic of ?s and now, we can have little tiny blips of real conversation with- him. I think he is so frustrated with the way he feels inside; his insides are always racing to put out a fire. He will ask for his medication; he does not want to go to school and embarrass himself. Yes, he does take his medications consistently; none of us would survive if he didn't. But, the medications don't really kick for a good hour and 15 minutes in the morning. The vyvanse doesn't even last for a whole 8 hours and they won't up it anymore because he is so tiny. By 2 pm, medications are worn off. So that is why I say mornings, evenings, etc. are so difficult. days when there is no school-the days are so long! I absolutely agree that the kids that suffer from these issues, well, there is no light switch to turn the issues off. Melatonin works for him, he is on 5 mg; at least now he sleep some. Brenden was on abilify for only a few days, the doctors took him off right away, it just made him crazy, more insane acting then anything. </span></span></p><p></p><p><span style="font-family: 'Comic Sans MS'"><span style="color: seagreen">School and IEPs! Yes, he has had them since kindergarten. His preschool teacher came to me on the last day of school and said, "ur daughter is doing great; she is very bright. Ur son, Brenden? He is flat-lined. Concentrate on ur daughter." I was devastated. His first IEP didn't go any better, they were very insulting about my son. We then did school of choice. He has made a lot of progress, as he went into first grade knowing nothing but how to make the letter B. He is now in 6th grade and is academically at kindergarten level. School has been an incredible stressor for him, til now. He is loving 6th grade with a very small class and is adapting a little bit to the "bigger kid" behavior. </span></span></p><p></p><p><span style="font-family: 'Comic Sans MS'"><span style="color: seagreen">Diets? No, we are just starting to get into that. I always believed what the doctors told me, but now, I believe that they don't know anymore then I do. I feel that the doctors are missing something and I can't explain it; something just feels very off. Brenden doesn't seem to fit into most categories, as least in my opinion. I see some of the disorders and challenges that some of the children on here are faced with and I just see it and think, how can one child be plagued with so many different things. It just seems like there has to be a better answer. The doctors tell me my son beats himself because he is cognitively impaired. What does one have to do with the other? It is not a black and white answer for me. Just because they say his IQ is a 66, why is that the explaination for his self-injurious behavior! If the cause were my husband and my parenting skills, then wouldn't all 4 of the kids be more like Brenden? Anyway, back to the diet. I guess my question would be for anyone that supports them and uses them, how do you go about implementing such a thing when you have other children? Do you do the diet across the board or just put the one child on the diet? Just a lot of questions regarding the diet, but we are working on his food diary. </span></span></p><p></p><p><span style="font-family: 'Comic Sans MS'"><span style="color: seagreen">So much time has been wasted because of my ignorance. I had no idea about how much information on services the schools actually never tell you about. The schools said my son was just a 66 IQ and maybe someday he would be able to use a calculator and a remote, but to plan on him always living with us. They asked me with an IQ score like his, what did I think his life would be like. They made me feel like a bad parent when I didn't want him in a self-contained classroom all day. I wanted him to participate in music, gym, etc. and go to lunch with his regular class. They said all I cared about was his social skills and even ask me if he needed to be supervised at lunch in case he choked! Like his IQ was to low for him to eat safely! I am not in denial that Brenden is different, but I do feel guilt for not realizing that I was not my child's advocate, when I thought I had been. </span></span></p><p></p><p><span style="font-family: 'Comic Sans MS'"><span style="color: seagreen">B's ( I would refer to him by his initials, but if I use first and last, he would be BS and if I used his first and middle, he would be BM-either way, he doesn't come out sounding so hot.) Well, I have kept all of you that are still reading, long enough. Can you tell by the length of my 2 posts that I don't get out of the house much to socialize?!! B's list of symptoms goes on and we are tired. I am hoping to find the strength from the people on this site to keep fighting. I admit, my white flag is halfway up. Brenden has the mouth of a WHOLE ship of sailors, does anyone have any suggestions on how to dissolve this behavior? He is the only one in our home that talks like that and I am very strict with their tv time ( we have to be, tv is full of bad ideas and he is already a danger all on his own). We have tried completely ignoring him, time outs, rewards, etc. When his eyes open, the mouth opens and the profanity and disgusting names, etc. come flying out!</span></span></p><p></p><p><span style="font-family: 'Comic Sans MS'"><span style="color: seagreen">Thank you for all your input and for sharing your stories. (and for my wordiness!!) Oh, I almost forgot! Brenden has very poor eye contact and never plays with toys. Bubbles and chalk are his favorite things! He def obsesses over certain things, sadly, our dogs are one of those things. </span></span></p><p><span style="font-family: 'Comic Sans MS'"><span style="color: seagreen">Take care and looking forward to your posts. Thank you<img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite8" alt=":D" title="Big Grin :D" loading="lazy" data-shortname=":D" /></span></span></p></blockquote><p></p>
[QUOTE="Thinking Outside the Box, post: 312500, member: 8210"] [FONT=Comic Sans MS][COLOR=seagreen]I apologize if I seem to not know my way around these forum things, as I am new to this and even having to guess on some of the abbreviations I find in others posts. THANK YOU, for all of advice, questions, and support from everyone that has already responded to my post. I haven't figured out how and if I can respond to each of your replies, so I am going to have to do this in one big one, sorry. [/COLOR][/FONT] [FONT=Comic Sans MS][COLOR=seagreen]First, let me say that I will be reading the Explosive Child; I just came across the name of the book yesterday in one of the posts I was reading! Can't wait to get my hand on it! Secondly, my son's history of doctors and therapists has sadly been a waste of time. We have come across more cold doctors and therapists since we have started on this road. Just changed pediatricians again 2 months ago and she is disgusted with the fact so many simple tests were never done. She immediately sent us to the lab after his 1st appointment. for allergy, gluten, growth plate x-rays, gave us a referral for an asap appointment. with a pediatrician. endo. Monday, I will be picking up the referral for a genetisist. We are also currently keeping a food diary for a few weeks so Brenden can be seen by a pediatrician. nutritionist who wants to check for intolerances, NOT allergies, to certain things in his diet. Brenden has just started therapy again, but was in a day program for part of the summer. Sadly, I go to therapy with-out my husband, because he feels that even though our son has such severe issues, he believes that he can control himself. My husband believes our son has challenges academically and cognitively, but the rest of it he feels is just to keep the health industry in business. He and I are def. not on the same page, but with that said, after having been married to him now for all these years, my husband seems to be a much milder version of my son and I believe he actually has difficulty understanding the issues at hand. [/COLOR][/FONT] [FONT=Comic Sans MS][COLOR=seagreen]The questions regarding medications, well, I am sure that I am not much different than most of you. I don't like them, but feel that for some kids, sometimes, yes, they are necessary. Vyvanse does work somewhat for Brenden; with-out it he is a train wreck. It does lessen the severity of some of his behaviors, but does not completely dissolve them. Geodon has helped his communication skills. Before, he could never clear his mind to answer the most basic of ?s and now, we can have little tiny blips of real conversation with- him. I think he is so frustrated with the way he feels inside; his insides are always racing to put out a fire. He will ask for his medication; he does not want to go to school and embarrass himself. Yes, he does take his medications consistently; none of us would survive if he didn't. But, the medications don't really kick for a good hour and 15 minutes in the morning. The vyvanse doesn't even last for a whole 8 hours and they won't up it anymore because he is so tiny. By 2 pm, medications are worn off. So that is why I say mornings, evenings, etc. are so difficult. days when there is no school-the days are so long! I absolutely agree that the kids that suffer from these issues, well, there is no light switch to turn the issues off. Melatonin works for him, he is on 5 mg; at least now he sleep some. Brenden was on abilify for only a few days, the doctors took him off right away, it just made him crazy, more insane acting then anything. [/COLOR][/FONT] [FONT=Comic Sans MS][COLOR=seagreen]School and IEPs! Yes, he has had them since kindergarten. His preschool teacher came to me on the last day of school and said, "ur daughter is doing great; she is very bright. Ur son, Brenden? He is flat-lined. Concentrate on ur daughter." I was devastated. His first IEP didn't go any better, they were very insulting about my son. We then did school of choice. He has made a lot of progress, as he went into first grade knowing nothing but how to make the letter B. He is now in 6th grade and is academically at kindergarten level. School has been an incredible stressor for him, til now. He is loving 6th grade with a very small class and is adapting a little bit to the "bigger kid" behavior. [/COLOR][/FONT] [FONT=Comic Sans MS][COLOR=seagreen]Diets? No, we are just starting to get into that. I always believed what the doctors told me, but now, I believe that they don't know anymore then I do. I feel that the doctors are missing something and I can't explain it; something just feels very off. Brenden doesn't seem to fit into most categories, as least in my opinion. I see some of the disorders and challenges that some of the children on here are faced with and I just see it and think, how can one child be plagued with so many different things. It just seems like there has to be a better answer. The doctors tell me my son beats himself because he is cognitively impaired. What does one have to do with the other? It is not a black and white answer for me. Just because they say his IQ is a 66, why is that the explaination for his self-injurious behavior! If the cause were my husband and my parenting skills, then wouldn't all 4 of the kids be more like Brenden? Anyway, back to the diet. I guess my question would be for anyone that supports them and uses them, how do you go about implementing such a thing when you have other children? Do you do the diet across the board or just put the one child on the diet? Just a lot of questions regarding the diet, but we are working on his food diary. [/COLOR][/FONT] [FONT=Comic Sans MS][COLOR=seagreen]So much time has been wasted because of my ignorance. I had no idea about how much information on services the schools actually never tell you about. The schools said my son was just a 66 IQ and maybe someday he would be able to use a calculator and a remote, but to plan on him always living with us. They asked me with an IQ score like his, what did I think his life would be like. They made me feel like a bad parent when I didn't want him in a self-contained classroom all day. I wanted him to participate in music, gym, etc. and go to lunch with his regular class. They said all I cared about was his social skills and even ask me if he needed to be supervised at lunch in case he choked! Like his IQ was to low for him to eat safely! I am not in denial that Brenden is different, but I do feel guilt for not realizing that I was not my child's advocate, when I thought I had been. [/COLOR][/FONT] [FONT=Comic Sans MS][COLOR=seagreen]B's ( I would refer to him by his initials, but if I use first and last, he would be BS and if I used his first and middle, he would be BM-either way, he doesn't come out sounding so hot.) Well, I have kept all of you that are still reading, long enough. Can you tell by the length of my 2 posts that I don't get out of the house much to socialize?!! B's list of symptoms goes on and we are tired. I am hoping to find the strength from the people on this site to keep fighting. I admit, my white flag is halfway up. Brenden has the mouth of a WHOLE ship of sailors, does anyone have any suggestions on how to dissolve this behavior? He is the only one in our home that talks like that and I am very strict with their tv time ( we have to be, tv is full of bad ideas and he is already a danger all on his own). We have tried completely ignoring him, time outs, rewards, etc. When his eyes open, the mouth opens and the profanity and disgusting names, etc. come flying out![/COLOR][/FONT] [FONT=Comic Sans MS][COLOR=seagreen]Thank you for all your input and for sharing your stories. (and for my wordiness!!) Oh, I almost forgot! Brenden has very poor eye contact and never plays with toys. Bubbles and chalk are his favorite things! He def obsesses over certain things, sadly, our dogs are one of those things. [/COLOR][/FONT] [FONT=Comic Sans MS][COLOR=seagreen]Take care and looking forward to your posts. Thank you:happy:[/COLOR][/FONT] [/QUOTE]
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