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Possible New Direction for Jess!!!!!
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<blockquote data-quote="susiestar" data-source="post: 483935" data-attributes="member: 1233"><p>When she was thrown from the horse we begged, pleaded, had six kinds of fits, and saw quite a few diff docs (different types and at least 2 of each) because her tailbone kept hurting and there was clearly a problem. NO ONE would do more than take an xray. they did an MRI of her shoulder, but would NOT mri her spine or even just her tailbone area. I was told to stop "babying" her and that the problems she was reporting were "hysterical" and "only due to the trauma". It drove us nuts. </p><p></p><p>I thought they had done an MRI of her entire spine and her head back wehn the second neuro we saw ordered them. I went through the records and reports and I was wrong. They did her head and neck only. So the info I thought we had, we don't. </p><p></p><p>Thankfully, the family care doctor has a LOT of common sense. I think I can get him to order the MRI so that the chiro can see it. The chiro who helped husband is the same one who looked at my mri's as a favor to my mom, for NO CHARGE, and sent me a four page letter on what course of action he would suggest, what to ask the neurosurgeon (he said it was WAY past the point that any halfway competent chiro would touch me, let alone adjust me - and he almost NEVER EVER says that) and how to ensure I got the best care before, during and after. </p><p></p><p>I have to first see if we can get a referral to him, then if not I will ask my mom to pay his fees. Since she offered to mortgage her house to pay for J to go to any clinic in the country that could help (2 top clinics have looked at records and not offered much hope), I am confident that if he is still seeing patients then he will see her.</p><p></p><p>If he can't, I know another really good chiro here too. So again we have some hope.</p><p></p><p>My big question is why don't the neurologists look past seizure disorders? They flat out won't treat anything that isn't "of the brain" here. I always thought that they dealt with the nervous system entirely, not just the brain, but they do NOT. At least not here and none we could find did in Cincy either. Heck, fibro is a nerve disorder and often the treatments that help are ones that work on nerves, not on inflammation type issues, but you won't get a neuro to treat you for that either. You get a rheumatologist or internist or once in a blue moon that happens on the 39th of Octember you get an immunologist who has some interest. But neuros don't even want to discuss it.</p><p></p><p>Anyway, that is on our agenda for the rest of this year and first of Jan. I really hope we can deal with the paperwork and get it done by then.</p></blockquote><p></p>
[QUOTE="susiestar, post: 483935, member: 1233"] When she was thrown from the horse we begged, pleaded, had six kinds of fits, and saw quite a few diff docs (different types and at least 2 of each) because her tailbone kept hurting and there was clearly a problem. NO ONE would do more than take an xray. they did an MRI of her shoulder, but would NOT mri her spine or even just her tailbone area. I was told to stop "babying" her and that the problems she was reporting were "hysterical" and "only due to the trauma". It drove us nuts. I thought they had done an MRI of her entire spine and her head back wehn the second neuro we saw ordered them. I went through the records and reports and I was wrong. They did her head and neck only. So the info I thought we had, we don't. Thankfully, the family care doctor has a LOT of common sense. I think I can get him to order the MRI so that the chiro can see it. The chiro who helped husband is the same one who looked at my mri's as a favor to my mom, for NO CHARGE, and sent me a four page letter on what course of action he would suggest, what to ask the neurosurgeon (he said it was WAY past the point that any halfway competent chiro would touch me, let alone adjust me - and he almost NEVER EVER says that) and how to ensure I got the best care before, during and after. I have to first see if we can get a referral to him, then if not I will ask my mom to pay his fees. Since she offered to mortgage her house to pay for J to go to any clinic in the country that could help (2 top clinics have looked at records and not offered much hope), I am confident that if he is still seeing patients then he will see her. If he can't, I know another really good chiro here too. So again we have some hope. My big question is why don't the neurologists look past seizure disorders? They flat out won't treat anything that isn't "of the brain" here. I always thought that they dealt with the nervous system entirely, not just the brain, but they do NOT. At least not here and none we could find did in Cincy either. Heck, fibro is a nerve disorder and often the treatments that help are ones that work on nerves, not on inflammation type issues, but you won't get a neuro to treat you for that either. You get a rheumatologist or internist or once in a blue moon that happens on the 39th of Octember you get an immunologist who has some interest. But neuros don't even want to discuss it. Anyway, that is on our agenda for the rest of this year and first of Jan. I really hope we can deal with the paperwork and get it done by then. [/QUOTE]
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