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Parent Support Forums
General Parenting
Prader Willi Syndrome
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<blockquote data-quote="lizzie09" data-source="post: 202305" data-attributes="member: 8006"><p>Thanks Marg</p><p> </p><p>Please get that name if you can and email if poss would be handy as I am in Ireland</p><p>There was a great paediatric service here for PWS until 18yrs old although syndrome is rare enoiugh here but at adult level noone is interested and |<em> cant get info from anyone on these issues despite website.The medicines used to modify serious behaviours are heavy stuff and to be avoided if at all possible.</em></p><p><em>Thank you for your interest</em></p><p><em>My life is good except when this starts about once a year so I suppose I am not too bad overall...very very sorry for the poor lad though</em></p></blockquote><p></p>
[QUOTE="lizzie09, post: 202305, member: 8006"] Thanks Marg Please get that name if you can and email if poss would be handy as I am in Ireland There was a great paediatric service here for PWS until 18yrs old although syndrome is rare enoiugh here but at adult level noone is interested and |[I] cant get info from anyone on these issues despite website.The medicines used to modify serious behaviours are heavy stuff and to be avoided if at all possible.[/I] [I]Thank you for your interest[/I] [I]My life is good except when this starts about once a year so I suppose I am not too bad overall...very very sorry for the poor lad though[/I] [/QUOTE]
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