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Prader Willi Syndrome
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<blockquote data-quote="totoro" data-source="post: 202401" data-attributes="member: 3155"><p>I recently spent a few hours in San Francisco talking with a Mom in a park whose son had a severe case of Prader Willi Syndrome. He had to be in full placement for him to receive the help he needed. She had him on the weekends. He was 12 I believe.</p><p>I agree with Susie though about journaling. This young man that I met had so much else going on that contributed to his eating and the severity of it. </p><p>He was diagnosis'd with co-morbid- Autism and severe Anxiety with Obsessive Compulsive Disorder (OCD) components. </p><p>He needed medications to help with his anxiety and to help him even start to function with the thoughts of less eating. </p><p>This young man would never live on his own due to the severity of his low functioning Autism and the inability to control his Prader Willi Syndrome at all. He was powerless over it. But the Mom told me that with his placement and the medications for Anxiety he was doing SO much better than he had ever done in the past.</p><p></p><p>Keep searching and journal, write down anything that may be triggering these episodes, seasons, stress, schedules, situations... anything. </p><p>For most of our kids with issues there may never be a cure but there is always help and hope.</p></blockquote><p></p>
[QUOTE="totoro, post: 202401, member: 3155"] I recently spent a few hours in San Francisco talking with a Mom in a park whose son had a severe case of Prader Willi Syndrome. He had to be in full placement for him to receive the help he needed. She had him on the weekends. He was 12 I believe. I agree with Susie though about journaling. This young man that I met had so much else going on that contributed to his eating and the severity of it. He was diagnosis'd with co-morbid- Autism and severe Anxiety with Obsessive Compulsive Disorder (OCD) components. He needed medications to help with his anxiety and to help him even start to function with the thoughts of less eating. This young man would never live on his own due to the severity of his low functioning Autism and the inability to control his Prader Willi Syndrome at all. He was powerless over it. But the Mom told me that with his placement and the medications for Anxiety he was doing SO much better than he had ever done in the past. Keep searching and journal, write down anything that may be triggering these episodes, seasons, stress, schedules, situations... anything. For most of our kids with issues there may never be a cure but there is always help and hope. [/QUOTE]
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