Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
General Discussions
The Watercooler
Pulling hair out in clumps
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="Hound dog" data-source="post: 383829" data-attributes="member: 84"><p>Heather, odds are the medication just needs to be adjusted. You felt great when you first started it simply because of the difference it made. You "seemed" to feel awesome.......while what it did was bring you up out of the extreme symptoms and made you feel that way. Your body has now grown accustomed to that dose and so you don't feel so awesome now. You said they started you at half the normal starting dose to be cautious. I'd say you need to be increased to at least the normal starting dose and see how that does for your symptoms. As long as you've been suffering from the symptoms, it's possible you'll need several adjustments in the medication dose to get it where it needs to be for you at this point.</p><p></p><p>With my script medication for the folic acid, when I 1st got it I felt like someone had given me a jolt of energy I hadn't had in years. Honestly, that just showed how badly my body was in need of the medication, how deficient I actually was. Within several weeks I just felt normal......the jolt of extra energy was gone. But I no longer fell asleep several times a day at the drop of a hat ect. My body was getting what it needed so I no longer noticed the huge effect. But let me forget to take it.....or god forbid not have the money for filling the script for a few days......and wow! It's that jolt all over again.</p><p></p><p>I know there is a valid concern for your heart. And there is a risk this medication can cause heart block. (actually tons of medications can) But you're going to have to consider quality of life here. Is it worth it to you to feel more normal with proper dosing of this medication despite the risk of heart block? Are you willing to take that risk in order to feel better? If you feel that it is then you're going to have to put your foot down with the docs and lay it on the line for them.</p><p></p><p>My docs know with me it's all about Quality of Life versus length. They've discovered they can not change my mind on this issue. I follow my renal diet to a point......but I also allow myself foods not allowed on the diet occasionally. If I stuck strictly to that diet I wouldn't be eating much and would be miserable......took me 2 wks to be certain of that. So I've come up with my own modified version. I take my medications because they make me feel better. (no brainer there) I could deal with dialysis I think probably up to a point. Transplant.....well, they won't discuss it with me anymore as I tend to make them want to rip out their hair. lol We'll just say that 99 percent of the time it's not what it's cracked up to be.......and that's IF you're lucky enough a donor can be found. Nope. I know the procedure, I know the after care. I know the odds of rejection. Some people may believe it's a miracle treatment, I just am not one of them. No thanks, it's not for me. A few extra years dealing with those issues is simply not worth it.</p><p></p><p>I'm assuming your neuro is treating you for this? Call him and ask to have the medication adjusted.</p><p></p><p>((hugs))</p></blockquote><p></p>
[QUOTE="Hound dog, post: 383829, member: 84"] Heather, odds are the medication just needs to be adjusted. You felt great when you first started it simply because of the difference it made. You "seemed" to feel awesome.......while what it did was bring you up out of the extreme symptoms and made you feel that way. Your body has now grown accustomed to that dose and so you don't feel so awesome now. You said they started you at half the normal starting dose to be cautious. I'd say you need to be increased to at least the normal starting dose and see how that does for your symptoms. As long as you've been suffering from the symptoms, it's possible you'll need several adjustments in the medication dose to get it where it needs to be for you at this point. With my script medication for the folic acid, when I 1st got it I felt like someone had given me a jolt of energy I hadn't had in years. Honestly, that just showed how badly my body was in need of the medication, how deficient I actually was. Within several weeks I just felt normal......the jolt of extra energy was gone. But I no longer fell asleep several times a day at the drop of a hat ect. My body was getting what it needed so I no longer noticed the huge effect. But let me forget to take it.....or god forbid not have the money for filling the script for a few days......and wow! It's that jolt all over again. I know there is a valid concern for your heart. And there is a risk this medication can cause heart block. (actually tons of medications can) But you're going to have to consider quality of life here. Is it worth it to you to feel more normal with proper dosing of this medication despite the risk of heart block? Are you willing to take that risk in order to feel better? If you feel that it is then you're going to have to put your foot down with the docs and lay it on the line for them. My docs know with me it's all about Quality of Life versus length. They've discovered they can not change my mind on this issue. I follow my renal diet to a point......but I also allow myself foods not allowed on the diet occasionally. If I stuck strictly to that diet I wouldn't be eating much and would be miserable......took me 2 wks to be certain of that. So I've come up with my own modified version. I take my medications because they make me feel better. (no brainer there) I could deal with dialysis I think probably up to a point. Transplant.....well, they won't discuss it with me anymore as I tend to make them want to rip out their hair. lol We'll just say that 99 percent of the time it's not what it's cracked up to be.......and that's IF you're lucky enough a donor can be found. Nope. I know the procedure, I know the after care. I know the odds of rejection. Some people may believe it's a miracle treatment, I just am not one of them. No thanks, it's not for me. A few extra years dealing with those issues is simply not worth it. I'm assuming your neuro is treating you for this? Call him and ask to have the medication adjusted. ((hugs)) [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
General Discussions
The Watercooler
Pulling hair out in clumps
Top