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Pulmonologist - what to expect
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<blockquote data-quote="susiestar" data-source="post: 444105" data-attributes="member: 1233"><p>A CF diagnosis might mean that difficult child has to beat the gunk out of you - someone would need to do these treatments where you arepounded on the back wtih a certain amt of force to loosen the gunk manually. I know MY difficult child would have found it fun where my husband would not have been able to do it. He won't hit ANYONE for ANY reason - makes him feel like a monster. But Wiz would have had a good laugh, lol. And been the best at it that he could be just to help me even when furious at me. He was always odd that way.</p><p></p><p>Anyway, that is more a joke.</p><p></p><p>I would expect that your doctor would have put you on an inhaled steroid LONG before now. I would urge you to try symbicort before advair. Advair is a powder that MUST be inhaled VERY forcefully. with-o forceful inhalation the powder doesn't get into the lungs and it does no good. Advair is also VERY hard on the vocal cords if you do not gargle after EVERY treatment. thank you and Wiz both had real problems with this. Research shows that under the age of about 10 it is rare for a child to use the medication properly and get any benefit from the medication, but they still push it at kids. Symbicort is an inhaler like any other and gets the medications to the lungs easily. </p><p></p><p>The nebulizer sounds like an excellent idea. IF you don't have a spacer, ins might not pay for it, but check ebay and amazon and get one. It will make a world of difference. My mother thought I was NUTS but went ahead and tried it when she was having asthma act up and was shocked at how much better it worked for her. So she now will use it when she needs an inhaler - when she remembers it. The difference in peak flow with Wiz when he used the inhaler with and without the spacer was dramatic.</p><p></p><p>If you don't have a peak flow meter, expect the pulmonologist to give or recommend one and ask you to chart results before and after medication each day. It helps them get you on the right medications. They may also have you do exercises where you use a gizmo that has you trying to raise a ping pong ball with your breath. It helps to move gunk out of your lungs.</p><p></p><p>Also, if you are not taking mucinex daily, invest in it. IF you use the brand name it is 2 pills a day. IF you use the cheaper instant release versions, take them according tot he directions - every 4-6 hrs. Either will help get the gunk out more easily. You can even use liquid robitussin as it is the same stuff - just take it as directed. It will help the gunk be less sticky and easier to get out.</p></blockquote><p></p>
[QUOTE="susiestar, post: 444105, member: 1233"] A CF diagnosis might mean that difficult child has to beat the gunk out of you - someone would need to do these treatments where you arepounded on the back wtih a certain amt of force to loosen the gunk manually. I know MY difficult child would have found it fun where my husband would not have been able to do it. He won't hit ANYONE for ANY reason - makes him feel like a monster. But Wiz would have had a good laugh, lol. And been the best at it that he could be just to help me even when furious at me. He was always odd that way. Anyway, that is more a joke. I would expect that your doctor would have put you on an inhaled steroid LONG before now. I would urge you to try symbicort before advair. Advair is a powder that MUST be inhaled VERY forcefully. with-o forceful inhalation the powder doesn't get into the lungs and it does no good. Advair is also VERY hard on the vocal cords if you do not gargle after EVERY treatment. thank you and Wiz both had real problems with this. Research shows that under the age of about 10 it is rare for a child to use the medication properly and get any benefit from the medication, but they still push it at kids. Symbicort is an inhaler like any other and gets the medications to the lungs easily. The nebulizer sounds like an excellent idea. IF you don't have a spacer, ins might not pay for it, but check ebay and amazon and get one. It will make a world of difference. My mother thought I was NUTS but went ahead and tried it when she was having asthma act up and was shocked at how much better it worked for her. So she now will use it when she needs an inhaler - when she remembers it. The difference in peak flow with Wiz when he used the inhaler with and without the spacer was dramatic. If you don't have a peak flow meter, expect the pulmonologist to give or recommend one and ask you to chart results before and after medication each day. It helps them get you on the right medications. They may also have you do exercises where you use a gizmo that has you trying to raise a ping pong ball with your breath. It helps to move gunk out of your lungs. Also, if you are not taking mucinex daily, invest in it. IF you use the brand name it is 2 pills a day. IF you use the cheaper instant release versions, take them according tot he directions - every 4-6 hrs. Either will help get the gunk out more easily. You can even use liquid robitussin as it is the same stuff - just take it as directed. It will help the gunk be less sticky and easier to get out. [/QUOTE]
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Pulmonologist - what to expect
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