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question about clinical trials/reseach studies--(testing, not medications)
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<blockquote data-quote="Marguerite" data-source="post: 424059" data-attributes="member: 1991"><p>As understand it, the rules are supposed to be the same for any good medical research around the world. However, there are always unscrupulous researchers who break the rules.</p><p></p><p>Research subjects should not pay for treatment that is part of a research project. Any results should be available to the subject, once the researchers have the results. However in the event of a blinded study, you might not get the results until the entire study has been completed for all subjects. This can take years. But a blinded study will say so. For example, the oxytocin study that difficult child 3 was part of has had the code broken eventually for the part difficult child 3 was in, but it was done in such a way that we know difficult child 3's individual result but the researchers do not. The study in total is not yet complete. </p><p></p><p>You should get a copy of the research protocol when you sign the consent form. And you MUST sign a consent form!</p><p></p><p>If the study involves neuropsychologist testing, you should get a copy of results once the researchers are able to get it to you. difficult child 3 was part of such a study a few years ago, we got copies of the results within a few weeks. However, the testing was non-standard.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 424059, member: 1991"] As understand it, the rules are supposed to be the same for any good medical research around the world. However, there are always unscrupulous researchers who break the rules. Research subjects should not pay for treatment that is part of a research project. Any results should be available to the subject, once the researchers have the results. However in the event of a blinded study, you might not get the results until the entire study has been completed for all subjects. This can take years. But a blinded study will say so. For example, the oxytocin study that difficult child 3 was part of has had the code broken eventually for the part difficult child 3 was in, but it was done in such a way that we know difficult child 3's individual result but the researchers do not. The study in total is not yet complete. You should get a copy of the research protocol when you sign the consent form. And you MUST sign a consent form! If the study involves neuropsychologist testing, you should get a copy of results once the researchers are able to get it to you. difficult child 3 was part of such a study a few years ago, we got copies of the results within a few weeks. However, the testing was non-standard. Marg [/QUOTE]
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question about clinical trials/reseach studies--(testing, not medications)
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