Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
General Discussions
The Watercooler
REALLY need some help, advice, wisdom....
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="Fran" data-source="post: 322630" data-attributes="member: 3"><p>LDM, so sorry for poor niece and family. I agree with SRL and TM about allergy testing or removing dairy just to see if it works. </p><p></p><p>I would be very concerned too. She may be having atypical symptoms which makes it hard to pinpoint something. How is her blood pressure? I'm assuming they did blood work to rule out diabetes as well as infection. You would want to rule out vascular disease which includes aneurysm and stroke. Her MRI would clear her of brain tumors but within that tiny area of sinus/eye/brain could have something lurking. I would want to be sure there is nothing in the pituitary area or wrapped around the brain stem. Maybe a secondary infection due to sinuses. </p><p>Has she had a spinal tap? </p><p>I don't know if they even still do angiograms anymore but that was one of the diagnostic tools for diagnosing brain pain back in the day. </p><p>I'm just guessing but chronic pain isn't something a parent is willing to take a face value for a normal 10 yr old child. I know I wouldn't. </p><p></p><p>I would start to do searches for pediatric headache specialtiests or pediatric pain management or more pediatric neurologists.</p><p></p><p>You know I would never pretend to be qualified to diagnose. I am just listing some of the things I would do to start to peel back layers to find what's going on with my kid. She needs to be relentless until she can come to understand what she can do to help this kid. </p><p></p><p>Mom should ask each specialist to recommend others who might be able to shed more light on the problem. Networking helped me find what I needed to know and expanded the circle of people helping my child. </p><p></p><p>A journal from mom is excellent as well as copies of all testing and consults.</p></blockquote><p></p>
[QUOTE="Fran, post: 322630, member: 3"] LDM, so sorry for poor niece and family. I agree with SRL and TM about allergy testing or removing dairy just to see if it works. I would be very concerned too. She may be having atypical symptoms which makes it hard to pinpoint something. How is her blood pressure? I'm assuming they did blood work to rule out diabetes as well as infection. You would want to rule out vascular disease which includes aneurysm and stroke. Her MRI would clear her of brain tumors but within that tiny area of sinus/eye/brain could have something lurking. I would want to be sure there is nothing in the pituitary area or wrapped around the brain stem. Maybe a secondary infection due to sinuses. Has she had a spinal tap? I don't know if they even still do angiograms anymore but that was one of the diagnostic tools for diagnosing brain pain back in the day. I'm just guessing but chronic pain isn't something a parent is willing to take a face value for a normal 10 yr old child. I know I wouldn't. I would start to do searches for pediatric headache specialtiests or pediatric pain management or more pediatric neurologists. You know I would never pretend to be qualified to diagnose. I am just listing some of the things I would do to start to peel back layers to find what's going on with my kid. She needs to be relentless until she can come to understand what she can do to help this kid. Mom should ask each specialist to recommend others who might be able to shed more light on the problem. Networking helped me find what I needed to know and expanded the circle of people helping my child. A journal from mom is excellent as well as copies of all testing and consults. [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
General Discussions
The Watercooler
REALLY need some help, advice, wisdom....
Top