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REALLY need some help, advice, wisdom....
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<blockquote data-quote="Josie" data-source="post: 322671" data-attributes="member: 1792"><p>My daughter, now 11, has had the 24/7 headache for 2 years now. We have done all of the above except the Diamond Headache Clinic.</p><p></p><p>I recently took her to another headache doctor that prescribed Indomycin, an NSAID. He said some headaches that don't respond to anything else will respond to it, pretty quickly. It is too soon to know for my daughter. It took me 2 years to hear about this, though, so I am mentioning it so your sister in law will know about it.</p><p></p><p>We have recently started treating my daughter for yeast and she does seem a little better. (She had reached a new low for 6 weeks beginning in Oct. when she felt so bad that she didn't even watch TV but just laid there in her bed. She is now out of her bed a little more and able to watch TV and be on her computer.)</p><p></p><p>Your sister in law might want to look into Lyme Disease and learn about the whole controversy. The mainstream view is that it is easily detected and easily treated. The controversial opinion is that the tests are not accurate and have many false negatives and that it doesn't necessarily go away with a single antibiotic treatment. The mainstream belief would not recognize a chronic headache as Lyme, but the other doctors might, depending on the history and other symptoms as well as testing. I think it is important for her to read both sides and see what she thinks instead of just relying on the doctors she sees. She should read about what the "Lyme Literate" (ILADS) doctors believe as well as the ID doctors beliefs.</p><p></p><p>If she is able to get rid of her daughter's headaches or get pain relief, will you please share with me what she does or where she gets the pain medications? I am willing to travel for pain relief for my daughter. So far, I am getting nowhere with it.</p><p></p><p>Did she get any relief from the antibiotics? My daughter got better early on with the antibiotics that they gave her for "strep throat" (without testing her or her complaining about her throat) but got worse again without the antibiotics. Then, when they tested her, she was negative so she didn't get more antibiotics.</p></blockquote><p></p>
[QUOTE="Josie, post: 322671, member: 1792"] My daughter, now 11, has had the 24/7 headache for 2 years now. We have done all of the above except the Diamond Headache Clinic. I recently took her to another headache doctor that prescribed Indomycin, an NSAID. He said some headaches that don't respond to anything else will respond to it, pretty quickly. It is too soon to know for my daughter. It took me 2 years to hear about this, though, so I am mentioning it so your sister in law will know about it. We have recently started treating my daughter for yeast and she does seem a little better. (She had reached a new low for 6 weeks beginning in Oct. when she felt so bad that she didn't even watch TV but just laid there in her bed. She is now out of her bed a little more and able to watch TV and be on her computer.) Your sister in law might want to look into Lyme Disease and learn about the whole controversy. The mainstream view is that it is easily detected and easily treated. The controversial opinion is that the tests are not accurate and have many false negatives and that it doesn't necessarily go away with a single antibiotic treatment. The mainstream belief would not recognize a chronic headache as Lyme, but the other doctors might, depending on the history and other symptoms as well as testing. I think it is important for her to read both sides and see what she thinks instead of just relying on the doctors she sees. She should read about what the "Lyme Literate" (ILADS) doctors believe as well as the ID doctors beliefs. If she is able to get rid of her daughter's headaches or get pain relief, will you please share with me what she does or where she gets the pain medications? I am willing to travel for pain relief for my daughter. So far, I am getting nowhere with it. Did she get any relief from the antibiotics? My daughter got better early on with the antibiotics that they gave her for "strep throat" (without testing her or her complaining about her throat) but got worse again without the antibiotics. Then, when they tested her, she was negative so she didn't get more antibiotics. [/QUOTE]
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