I have been calling the local PT places on our insurance on a DAILY basis. I went to one and the person who could schedule me was "out" for the day, so I couldn't make an appointment. I have been trying for WEEKS to get Jessie seen for PT for her muscle spasm. They are getting worse. Has anyone had or heard of spasms that come in waves or roll over the body? Her back and thighs get these terribly strong spasms that are not only painful but visible to the eye - sometimes even THROUGH her clothing! Of course they can always be felt. It is the strangest thing to have the muscle underneath your hand get hard in almost a rhythmic way. The neuro says it isn't related to neuro stuff. The pediatrician says see a PT first. The ortho says see a PT first. The insurance says see 1 of these 3 practices - 1 is closed, 1 only sees patients after they see the docs in that practice, and the other one won't return a phone call or let me make an appointment. We took her to Sams with us thinking that an outing would help her spirits and she hadn't been (and it is kinda fun). She used one of the motorized carts because she could barely get into the store. She was a real trooper, esp when I wouldn't let her buy $20 worth of candy bars (but it is MY money!!! Yes, but it is MY Sams card dearie. Can you see the HUGe eyeroll? I thought they were coming out and going to roll around on the concrete floor!)) But last night was TERRIBLE. She was in agony. It is the first time in a long, long, long time she has just wanted to be held by me while she tried to cope. Usually she wants to be alone. It was so hard to hold her and feel the muscles go into spasm, relax just a little bit, and spasm again harderr - over and over constantly. I am going to have to make calls for PT in Tulsa, hoping SOMEONE can get us in soon. It has been 2 MONTHS that I have been trying to get an appointment here for her.