Jess was in talking to me about an hour and a half ago. She went in to use my bathroom before she went into the other room. I got busy and then talked with husband. It didn't register that she was still in my bathroom when I came back into my room. Just now I went into the bathroom and she was still in there. She had been sitting on the toilet for almost 1 hr and 45 minutes - UNABLE TO MOVE. She says she could move her eyes and she knew time was passing but could not move her muscles or her body. She could not cry out at all. When I came in her voice was not loud and seemed kind of weak, but not like she was trying to make it sound like that. I am scared and don't know what is going on. Some kind of seizure is a question, but I doubt any neuro will even really listen. The EEG they did in Dallas showed no seizure activity so they say she does not have Absence epilepsy anymore. They don't care that she took lamictal less than 12 hours before the test started (24hr EEG) or that it takes weeks to become fully effective so would take longer than a day to be out of the system. Our neuro is gone for the day and so is the pediatrician. She is moving and functioning now, but is exhausted. I have her tucked into my bed and am on the computer by her. I am going to stay with her this afternoon and watch to see what happens from here. If it happens again it will be a 911 call - esp if I can get to her while she is unable to move. Short of having this happen when a doctor or paramedic can see it, I don't have any expectation that a doctor will do anything about htis. And I am frustrated no end and terrifed that something is really wrong with my baby!! Any ideas would be appreciated. We will not be going to the ER because the will likely not even see her - and if they do they will give us at most benadryl. If she isn't actually unable to move it will be put down as more evidence that either she or I is doing this for attention. Grrrrrrr.