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<blockquote data-quote="weaselqt" data-source="post: 80656" data-attributes="member: 3989"><p>Our experience has been hell for easy child/difficult child 1 physically and for us financially for almost two years now.</p><p></p><p>My daughter was taking a very expeensive medication for almost 10 years when our insurance company decided they would no longer pay for it because they wanted an "alternative therapy". Well, I guess they FORGOT because this medication was a last choice after spending over a year in the hospital - over 10 years ago.</p><p></p><p>Her specialist was semi-retired (yes) and would only be here every two to three months and the other times was in Arizona. Guess what, this was during his time "off".</p><p></p><p>When he came back, 40 days later and easy child/difficult child 1 missed 15 days of school and could hardly walk, etc. etc. - he contacted the insurance company and told them that he would admit her and they would have to pay that bill on a daily basis so he can try "alternative therapies" that have already been tried and failed.</p><p></p><p>In the meantime - we are having to pay for several doctor's visits to other specialists to take care of rashes and other "odd" problems she never had before. Her immune system attacts her and the medication keeps it low so that she can function as normally as possible for a 17 year old.</p><p></p><p>Anyway - ever since then, her arthritis has not been able to be controlled because her body is now trying to reject the only medication and it will not help this and we spend so much time in and out of the hospital. She is now taking Remicade IV infusion - but I am sure that is costing them a pretty penny. They should have left her well enough alone. </p><p></p><p>By the way, her other doctor retired and we have a new one for about a year now and he is absolutely wonderful! Younger and has a fresh outlook for her.</p></blockquote><p></p>
[QUOTE="weaselqt, post: 80656, member: 3989"] Our experience has been hell for easy child/difficult child 1 physically and for us financially for almost two years now. My daughter was taking a very expeensive medication for almost 10 years when our insurance company decided they would no longer pay for it because they wanted an "alternative therapy". Well, I guess they FORGOT because this medication was a last choice after spending over a year in the hospital - over 10 years ago. Her specialist was semi-retired (yes) and would only be here every two to three months and the other times was in Arizona. Guess what, this was during his time "off". When he came back, 40 days later and easy child/difficult child 1 missed 15 days of school and could hardly walk, etc. etc. - he contacted the insurance company and told them that he would admit her and they would have to pay that bill on a daily basis so he can try "alternative therapies" that have already been tried and failed. In the meantime - we are having to pay for several doctor's visits to other specialists to take care of rashes and other "odd" problems she never had before. Her immune system attacts her and the medication keeps it low so that she can function as normally as possible for a 17 year old. Anyway - ever since then, her arthritis has not been able to be controlled because her body is now trying to reject the only medication and it will not help this and we spend so much time in and out of the hospital. She is now taking Remicade IV infusion - but I am sure that is costing them a pretty penny. They should have left her well enough alone. By the way, her other doctor retired and we have a new one for about a year now and he is absolutely wonderful! Younger and has a fresh outlook for her. [/QUOTE]
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