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The Watercooler
Sleep study and EMG
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<blockquote data-quote="flutterby" data-source="post: 327499" data-attributes="member: 7083"><p>The thing is, finding out that "nothing" is wrong doesn't help me any. Something is obviously wrong. I go through all of these tests hoping for answers - and the doctors do these tests based on my history and clinical presentation because they hope they can provide answers.</p><p></p><p>So, not getting any answers doesn't make it "nothing wrong"; it just makes it, "we still don't know".</p><p></p><p>I have fibromyalgia and Chronic Fatigue Syndrome. That we know. But, I have a lot of symptoms that don't match either one of those, as well. There's a lot of guessing. The neuro was sure that the muscle weakness and cognitive issues would be related to a sleep issue when I saw him the first time. Sleep study was normal, so now he's saying it could be from the fibro. And it can be. There's just so much guessing going on and no treatment. </p><p></p><p>I have the lip biopsy Jan 6. After that, I'm done with tests unless they can give me a good reason why to do more. Although, if the Sjogren's test (lip biopsy) is negative, I will be really interested in finding out why I don't have any salivary glands in my lips.</p><p></p><p>I'm just frustrated. And tired. So exhausted. I'm probably not making a lot of sense. I just want a little bit of my life back.</p></blockquote><p></p>
[QUOTE="flutterby, post: 327499, member: 7083"] The thing is, finding out that "nothing" is wrong doesn't help me any. Something is obviously wrong. I go through all of these tests hoping for answers - and the doctors do these tests based on my history and clinical presentation because they hope they can provide answers. So, not getting any answers doesn't make it "nothing wrong"; it just makes it, "we still don't know". I have fibromyalgia and Chronic Fatigue Syndrome. That we know. But, I have a lot of symptoms that don't match either one of those, as well. There's a lot of guessing. The neuro was sure that the muscle weakness and cognitive issues would be related to a sleep issue when I saw him the first time. Sleep study was normal, so now he's saying it could be from the fibro. And it can be. There's just so much guessing going on and no treatment. I have the lip biopsy Jan 6. After that, I'm done with tests unless they can give me a good reason why to do more. Although, if the Sjogren's test (lip biopsy) is negative, I will be really interested in finding out why I don't have any salivary glands in my lips. I'm just frustrated. And tired. So exhausted. I'm probably not making a lot of sense. I just want a little bit of my life back. [/QUOTE]
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Sleep study and EMG
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