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General Parenting
Slightly hopeful, but mostly terrified
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<blockquote data-quote="1 Day At a Time" data-source="post: 252219" data-attributes="member: 3704"><p>Thanks to everyone ! You all have given me more food for thought. Fran, thanks for reminding me of the Quality of Life study. I had seen that earlier, but I don't think I was really ready to digest the information when I first saw it. The seeds are falling on fertile ground for sure now!</p><p></p><p>I do believe that it takes many folks on the spectrum extra time to pass through the developmental stages. They are just dealing with so many sensory issues and problems with initiation of actions, that they take so much extra time. But with our difficult child it seems to be more than that. He's not interested in independence. He told his dentist a couple of weeks ago, that he never planned to leave home. She thought that was humorous because her son, who is much younger always says the same thing. But what is normal at 10 is not so normal at 17!</p><p></p><p>Marg, I think that your approach to , and assistance with, employment for difficult child 1 is awesome. I believe this is this extra effort required to help our difficult children attain and maintain employment. This assistance can be obtained here in the states through governmental programs, through private pay groups, charitable organizations, or personal effort like your own. I'm reaching the understanding that this will be a lifelong process and will more than likely always be necessary. difficult child got his diagnosis a year ago, so these are all new ideas that I am having to understand and incorporate. husband definitely is not there yet! I think he still truly believes that this is something that difficult child will "grow out of it".</p><p></p><p>I went to a session on estate planning for children will autism. It also was quite eye opening. I have decided to meet with a financial planner and an attorney in the next few weeks to start putting together a plan for difficult child after husband and I are gone. I probably will be speaking with easy child next week to see if he will agree to be an executor and trustee. Big decisions, all the way around!</p><p></p><p>Valerie</p></blockquote><p></p>
[QUOTE="1 Day At a Time, post: 252219, member: 3704"] Thanks to everyone ! You all have given me more food for thought. Fran, thanks for reminding me of the Quality of Life study. I had seen that earlier, but I don't think I was really ready to digest the information when I first saw it. The seeds are falling on fertile ground for sure now! I do believe that it takes many folks on the spectrum extra time to pass through the developmental stages. They are just dealing with so many sensory issues and problems with initiation of actions, that they take so much extra time. But with our difficult child it seems to be more than that. He's not interested in independence. He told his dentist a couple of weeks ago, that he never planned to leave home. She thought that was humorous because her son, who is much younger always says the same thing. But what is normal at 10 is not so normal at 17! Marg, I think that your approach to , and assistance with, employment for difficult child 1 is awesome. I believe this is this extra effort required to help our difficult children attain and maintain employment. This assistance can be obtained here in the states through governmental programs, through private pay groups, charitable organizations, or personal effort like your own. I'm reaching the understanding that this will be a lifelong process and will more than likely always be necessary. difficult child got his diagnosis a year ago, so these are all new ideas that I am having to understand and incorporate. husband definitely is not there yet! I think he still truly believes that this is something that difficult child will "grow out of it". I went to a session on estate planning for children will autism. It also was quite eye opening. I have decided to meet with a financial planner and an attorney in the next few weeks to start putting together a plan for difficult child after husband and I are gone. I probably will be speaking with easy child next week to see if he will agree to be an executor and trustee. Big decisions, all the way around! Valerie [/QUOTE]
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