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The Watercooler
So....can we talk?
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<blockquote data-quote="Josie" data-source="post: 354839" data-attributes="member: 1792"><p>I am an optimist. My daughter is in a situation similar to yours. Maybe I am vulnerable to being exploited, but I have not accepted that she is going to live like this forever. I can't imagine telling her she is. Maybe I am doing her a disservice, but frankly, I know she would not want to live, if that was the case.</p><p> </p><p>So, being the eternal optimist, I believe if you felt that much better after you were in the hospital with your heart attack, you can feel much better again. Do you have your records from that time and have you looked them over to see what medications you were taking when you got home or were given in the hospital?</p><p></p><p>Also, a few months ago, she was having trouble walking due to fatigue and balance problems. We thought her illness was progressing, but we stopped one of her medications which eliminated her balance problems. Then we stopped another one and her fatigue seems to be improving some. (She would not agree with this but she is doing more now.) Her doctor didn't think these medications were causing the problems but changed them for other reasons. </p><p></p><p>It was far from a miracle for her to stop those medications, but it does seem to have improved her situation a little and when you are that ill, every little bit helps. So possibly, you could find some improvement with some medication changes, even if it is stopping some. I will say that I was very nervous about stopping hers because I thought it was helping.</p></blockquote><p></p>
[QUOTE="Josie, post: 354839, member: 1792"] I am an optimist. My daughter is in a situation similar to yours. Maybe I am vulnerable to being exploited, but I have not accepted that she is going to live like this forever. I can't imagine telling her she is. Maybe I am doing her a disservice, but frankly, I know she would not want to live, if that was the case. So, being the eternal optimist, I believe if you felt that much better after you were in the hospital with your heart attack, you can feel much better again. Do you have your records from that time and have you looked them over to see what medications you were taking when you got home or were given in the hospital? Also, a few months ago, she was having trouble walking due to fatigue and balance problems. We thought her illness was progressing, but we stopped one of her medications which eliminated her balance problems. Then we stopped another one and her fatigue seems to be improving some. (She would not agree with this but she is doing more now.) Her doctor didn't think these medications were causing the problems but changed them for other reasons. It was far from a miracle for her to stop those medications, but it does seem to have improved her situation a little and when you are that ill, every little bit helps. So possibly, you could find some improvement with some medication changes, even if it is stopping some. I will say that I was very nervous about stopping hers because I thought it was helping. [/QUOTE]
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