So riddle me this

Discussion in 'General Parenting' started by Big Bad Kitty, Mar 5, 2008.

  1. Big Bad Kitty

    Big Bad Kitty lolcat

    I finally find a Neuro psychiatric that takes medicaid, and after spraining every limb from doing the happy dance, I fill out their questionnaire. I emailed it yesterday.

    Today I get a call from the office, saying that the doctor looked at it, and he didn't think that Tink needed an evaluation. He said he problems seemed to be behavioral, but not cognitive or academic, so he did not think an evaluation was necessary. He is referring me to a behavioral specialist and an Occupational Therapist (OT).

    I argued that I felt she had an improper diagnosis and was not getting the supports she needed. They said that no, I probably would not get any supports, considering how well she does in school. (I've never been able to get any Occupational Therapist (OT) services from her school, even though she has very blatant sensory issues, because they do not impede her ability to learn).

    I feel like Charlie Brown! I can't even get a Neruopsych evaluation for my kid!!
  2. klmno

    klmno Active Member

    That sounds ridiculaous- usually they are trying people to have more tests done. Can you get anyone- pediatrician or school- to recommend a neuropsychologist be done?
  3. smallworld

    smallworld Moderator

    BBK, how can the neuropsychologist tell her challenges are behavioral, not cognitive or academic from a questionnaire? Has any testing ever been done on Tink?

    If you think the diagnosis is wrong, what do you suspect it is?
  4. SomewhereOutThere

    SomewhereOutThere Well-Known Member

    Sadly, maybe, although they take Medicaid, they are selective about which Medicaid patients they take. Bet they wouldn't have turned you down if you had regular insurance or cash :dissapointed:
  5. nvts

    nvts Active Member

    Any chance of videotaping some of her "purely behavioral" behaviors and e-mailing them? I'd contact medicaid and make a complaint. This is abuse of power in my opinion.

    Hey Charlie Brown! You've got rocks left over from Halloween, don't you wish you could lob a few at this Chucklehead!

    Call your pediatrician and see if they have any "ins" with this guy!

  6. Big Bad Kitty

    Big Bad Kitty lolcat

    My pediatrician had no leads for me. He had referred me to the learning & children's hospitals (over a YEAR ago) and I was told back then that they stopped taking Medicaid.

    Her psychiatrist thinks that whether her diagnosis is right or wrong, as long as she is doing "well" on the medication she is on, she does not need further evaluation. He will not give me a referral to a neuropsychologist.

    I am in tears over this. This kid may never have a chance at higher education because she can't get the help she needs now. I normally don't cry foul, "poor me", but this really stinks. MWM, you are right. If I had money, my kid could have all the help she needed. Then I could go on Oprah and tell everyone how I cured my kid of Autism.

    Tink is going to fall through the cracks.
  7. Star*

    Star* call 911


    I don't think she is autistic either - door opens another - and parents with severely disabled children LOVE to help others - otherwise we wouldn't be us go to the other groups in your area and ASK.
  8. Star*

    Star* call 911

  9. flutterbee

    flutterbee Guest

    BBK, I'm so sorry. I'm with can he tell what is prompting the 'behavioral' issues without seeing her. Sheesh. All of our kids have behavioral issues. It's what they stem from that's important.

    Could you get your pediatrician to give a referral? Would that maybe carry more weight with this guy?

  10. totoro

    totoro Mom? What's a GFG?

    You know even thought we DO have insurance and we DO have a great Nuero-psychiatric report BBK. We still can not get any help at school... because K is TOO smart... Because she brings the average up... because she is so afraid of getting in trouble.
    Because her trouble is mental and they do not aknowledge that at her school... So do not feel like it is only you. That that it helps, but it is just our poor kids... no-one wants to help them!!! Even though K has to get up, move, can't sit still, can't keep her mouth shut... SHE's fine... even though she has missed 20+ days of school...
    So I have all of the papers that PROVE she is messed up, say she needs help... say she needs something!!!
    So we wait, until she fails... I know, It #&@*#&, I know it is not fair... but I teach her at home... I work with her at home... I know that is not my job!!! But what else am I supposed to do???
    I am so sorry.
    I would keep bugging everyone... I would bug your pediatrician, your psychiatrist, video, right up parent reports... call anyone..., BUG everyone... IN a NICE way...
    DO you have a video camera? Cause I got an extra one!!!
    Call other Nuero-psychiatric depts... and tell them your story... Call UofI... I love that place!!!
    Hugs and hang in there...hey put on a sundress and tell Brett to take you out!!!
  11. crazymama30

    crazymama30 Active Member

    I am with toto, difficult child does not have problems at school academically, but has tons of behavioral problems. Luckily his school realizes his behavior problems could impact his academic skills , so he has an IEP. We have not tried for a neuropsychologist evaluation as his diagnose and the treatment of it seem appropiate.

    Good luck to you, and I hope something works.
  12. Wiped Out

    Wiped Out Well-Known Member Staff Member

    How completely ridiculous and frustrating!!!!!!!!!!!!

    Gentle hugs.
  13. Big Bad Kitty

    Big Bad Kitty lolcat


    Thanks for the support, ladies. Star, I appreciate the links. I have contacted many (but not all) of those places already. I have not found one yet that takes Medicaid. But I will check on the others.

    OK...time to polish the armor.