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So worried about Diva
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<blockquote data-quote="susiestar" data-source="post: 502606" data-attributes="member: 1233"><p>Sending hugs, thoughts and prayers. PLEASE have them start the bloodwork to check her calcium and vitamin D levels. I KNOW you, and I know you have made sure she gets enough of those in her diet. The problem can be one with her parathyroid gland. THey are finding more poeple like me who do not seem to use Vit D appropriately if at all, which leads to early bone problems. Some of the latest research is showing that it can be related to the parathyroid gland but I am not yet sure exactly how to identify the problem and neither is my doctor. My pain doctor told me about it but my regular doctor is having trouble figuring out what tests to do. Some people are helped greatly by using D3 supplements instead of the regular D supplements. They also have super high dose prescription strength D supplements that are usually taken weekly, but that is not always easy to take. I can't tolerate them and was spending 36 hours vomiting non-stop after every dose which is why that was stopped. They CAN try various antinausea medications like phenergan or compazine or zofran, and adding a proton pump inhibitor like prilosec is helpful for some people who have problems with the supplement. Or so I have been told, but I wasn't lucky enough to be helped and my docs are scratching their heads in confusion right now. </p><p></p><p>I hope and pray that low Vit D levels are NOT the problem and that whatever the problem is can be corrected. Do NOT let them tell you that good calcium levels mean you don't need to check Vit D levels. I had to have a specialist explain to my reg doctor that the reason I have good levels of calcium in my blood, actually great levels, is because it is coming out of my bones into the blood rather than coming from my diet and going into the bones. It has nothing to do with the calcium in my diet or from supplements, though that makes me sick also. Mostly it is the Vit D issue. </p><p></p><p>I don't say this to scare you. She may need an endocrinologist and you will have to ask a LOT of questions as many are specializing in diabetes these days and not treating many other things. I want her to get help for this ASAP so that she isn't a 42yo with bones that are to fragile and painful to let her live a full life. Early treatment should be able to turn this totally around, and I hope it does. I am SO thankful that the orthopedist has taken a GOOD look at her and really LISTENED to the problems. I hope he can figure out a solution that will end her pain and give her a strong body that wll let her live whatever life she wants. She will need to speak to a therapist because this may be a chronic problem and that is one heck of a mind and soul twisting problem. Having a therapist who knows about the unique problems of living in pain and iwth chronic health issues can make a HUGE difference in her life. I know it has in mine, both when I was a teen and throughout my life.</p></blockquote><p></p>
[QUOTE="susiestar, post: 502606, member: 1233"] Sending hugs, thoughts and prayers. PLEASE have them start the bloodwork to check her calcium and vitamin D levels. I KNOW you, and I know you have made sure she gets enough of those in her diet. The problem can be one with her parathyroid gland. THey are finding more poeple like me who do not seem to use Vit D appropriately if at all, which leads to early bone problems. Some of the latest research is showing that it can be related to the parathyroid gland but I am not yet sure exactly how to identify the problem and neither is my doctor. My pain doctor told me about it but my regular doctor is having trouble figuring out what tests to do. Some people are helped greatly by using D3 supplements instead of the regular D supplements. They also have super high dose prescription strength D supplements that are usually taken weekly, but that is not always easy to take. I can't tolerate them and was spending 36 hours vomiting non-stop after every dose which is why that was stopped. They CAN try various antinausea medications like phenergan or compazine or zofran, and adding a proton pump inhibitor like prilosec is helpful for some people who have problems with the supplement. Or so I have been told, but I wasn't lucky enough to be helped and my docs are scratching their heads in confusion right now. I hope and pray that low Vit D levels are NOT the problem and that whatever the problem is can be corrected. Do NOT let them tell you that good calcium levels mean you don't need to check Vit D levels. I had to have a specialist explain to my reg doctor that the reason I have good levels of calcium in my blood, actually great levels, is because it is coming out of my bones into the blood rather than coming from my diet and going into the bones. It has nothing to do with the calcium in my diet or from supplements, though that makes me sick also. Mostly it is the Vit D issue. I don't say this to scare you. She may need an endocrinologist and you will have to ask a LOT of questions as many are specializing in diabetes these days and not treating many other things. I want her to get help for this ASAP so that she isn't a 42yo with bones that are to fragile and painful to let her live a full life. Early treatment should be able to turn this totally around, and I hope it does. I am SO thankful that the orthopedist has taken a GOOD look at her and really LISTENED to the problems. I hope he can figure out a solution that will end her pain and give her a strong body that wll let her live whatever life she wants. She will need to speak to a therapist because this may be a chronic problem and that is one heck of a mind and soul twisting problem. Having a therapist who knows about the unique problems of living in pain and iwth chronic health issues can make a HUGE difference in her life. I know it has in mine, both when I was a teen and throughout my life. [/QUOTE]
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