Ok. Well. Stepgfg hasn't been online for quite a while, at least 2 weeks. Except she did pop on long enough to tell Nichole they were sick. Turns out hers wasn't what the kids had. She's had a horrendous migraine for the past week or more. Crippling. Finally her husband convinced her to go to the ER. They admitted her because by that point she'd started seizing. When the neuro saw her she asked again what the diagnosis was exactly. chiari malformation type 2 Step difficult child doesn't know it but I know someone with this condition. A bit milder than type 2. But this condition I know. Studied it in school, too. And what she's telling me is ringing true. After diagnosis they did extensive testing to see if they could do surgery to place a shut to relieve the pressure. But after the MRI's and such neuro thinks it will do more harm, and that the risk of her not surviving the surgery too great to attempt it. This also explains so many of the various symptoms she was having here. She doesn't have the spina bifida, but neuro couldn't tell her why. Because hers is awfully extensive. Of course it gets worse with age too if it can't be corrected and or a shut placed to relieve the pressure. And it's not even far fetched that it's been missed up til now because my friend wasn't diagnosed until she was 29, and it was found by accident when they were looking for something else. D@mn. She got the cards and said that cheered her up alot. I'm glad. Stepgfg said she's scared. (I don't blame her) And her husband just lost his job because the restaurant he's been managing went bankrupt and closed. They're waiting for unemployment to kick in. And he's searching for another job. No request for money. (not that I could send it anyway, or would) So I gave her links to various resources, including that anglefood ministries one TM had posted about. That's all I can do. This hasn't quite soaked in yet. I just finished reading the email. And here's a kicker........she suggested places (good ones) to try for Travis some glasses. I asked for her address so I could send envelopes and stamps, and so I could sign her up for free samples that I do online. This is serious. I didn't want her lying. But I didn't want there to be a deadly conditon either. I think I'll be talking with easy child about paying her a visit, then speak with stepgfg about it. This family needs to be reunited before something happens. There is something wrong. I don't know what it is. But dammit there is something wrong when you have 2 kids with conditions that are terminal. Travis is 22 and stepgfg is 28. There is something wrong with that. dammit Sorry. Not making much sense right now.