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Still At the Hospital
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<blockquote data-quote="susiestar" data-source="post: 476494" data-attributes="member: 1233"><p>Thanks all! I do understand, truly. My mom came to visit tonight and we had a good talk. We snuck a few min away from Jess, which we don't get often because Jess is usuallyt here when I am with my mom. I let her know a few things that were going on that I jsut didn't want to talk about with Jess. Like the fact that if we had done what the last neuro wanted with tylenol then we might be looking at severe liver damage or a transplant by now - 8 extra strength tylenol per day for 18 mos was just not happening. Mom again offered to pay for us to go to any hospital that we thought could/would take a comprehensive look at things. I would take her up on it, but so far a couple have reviewed her records and said they wouldn't do much that we are not doing.</p><p></p><p>The last eeg tech gave me the names of some docs that might be a big help if the neuro isn't able to help. I just wrote down some of my recipes for her as a thank you (she had to redo ALL of the leads on J's head because the cord got twisted and pulled them loose, so we had lots of time to talk).</p><p></p><p>Anyway, thanks all!</p></blockquote><p></p>
[QUOTE="susiestar, post: 476494, member: 1233"] Thanks all! I do understand, truly. My mom came to visit tonight and we had a good talk. We snuck a few min away from Jess, which we don't get often because Jess is usuallyt here when I am with my mom. I let her know a few things that were going on that I jsut didn't want to talk about with Jess. Like the fact that if we had done what the last neuro wanted with tylenol then we might be looking at severe liver damage or a transplant by now - 8 extra strength tylenol per day for 18 mos was just not happening. Mom again offered to pay for us to go to any hospital that we thought could/would take a comprehensive look at things. I would take her up on it, but so far a couple have reviewed her records and said they wouldn't do much that we are not doing. The last eeg tech gave me the names of some docs that might be a big help if the neuro isn't able to help. I just wrote down some of my recipes for her as a thank you (she had to redo ALL of the leads on J's head because the cord got twisted and pulled them loose, so we had lots of time to talk). Anyway, thanks all! [/QUOTE]
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