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Test Results Yippee!!!!!!!!!
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<blockquote data-quote="susiestar" data-source="post: 513209" data-attributes="member: 1233"><p>I actually don't have a clue if my vit D levels are up or not. The doctor forgot to order them. He thought since my calcium levels were on the high side of good that the vit D testing wasn't needed. He forgot somehow that the calcium levels were up because it was coming OUT of my bones, nto going into them. I was beyond frustrated when he did this three times, then figured I just couldn't continue to stress over it - stress had to be as bad and the low D levels. </p><p></p><p>Honestly, they don't really know why/how my bones got better. No one has a clue and it is NOT supposed to work that way. When the first bone density scan was run they actually did it a second time for free, telling me the results were not possible for a woman in her thirties. I went to the endocrinologist that the doctor wanted me to see, figured out how to get the shots and how to try to keep the supplements down, and it all tore up my body. Right now they are pretty much as clueless as they were after the first test.</p><p></p><p>We did NOT take any of the bone building medications because I have a long history of gastric problems and because if you don't have enough calcium and vit D in your body, the bone building medications can put you in what my rheumatologist called "complete agony that we mostly just give you enough morphine to sedate you for the time until it is out of your body" and he was pretty darn sure that as I was already on a lot of pain medications that it would involve a lengthy hospital stay. At the time he had a patient in the hospital in a medically induced coma to get her to the point the bone building medication was out of her system. He said that few docs that he talked to knew that the bone building medications woudl do that if your body wasn't able to put the calcium into your body, and that they were all pretty upset that there was NO warning to them about this from the drug companies. He was a super caring, very sweet, very much on top of the latest research doctor, and even went to several conferences specifically for patients with osteoporosis/poenia to see what other docs were doing in patients who did not tolerate Vit D. He ended up with about four of us from all over the state because he asked so many questions and other docs sent people to him. So after he had done all that, when he said to be super wary about the bone building medications (boniva, actonel are the ones he meant), I listened and flat out told the docs it would take more to convince me that the medication was a good choice for ME. </p><p></p><p>Anyway, I did go through several months where I ate a LOT more than1 yogurt a day, some days it was all I ate other than fruits and veggies. NOT the healthiest, esp as there is only one flavor that doesn't make me sick to my stomach (texture/taste issue - so many remind me of snot that it is just not funny and I totally am the source of my kids' sensory issues and I totally own up to that! I am a pickier eater than my kids are!), so it is a challenge. </p><p></p><p>I learned a LONG time ago that docs are probably more confused that patients/parents are about the body. I drive husband nuts with this because he thinks that docs know everything and I generally have an idea of what I want them to do and why and I am not terribly patient when they don't agree with me. If the doctor will explain what/why he thinks his way is better, I will TRY. But that try is fairly short if I don't see positive results. I am sure I am a challenging patient, but mostly it is because I want to know the reasoning behind the diagnosis/rx/plan. I also want to be consulted and not ordered. </p><p></p><p>And I only get worse if it is my kid. So few docs will admit that they are totally clueless and that scares me. I think MANY of us would be better served by following our instincts and remembering that moderation is the best thing for almost every problem. well, except allergies. But for most things? If you pay attention to your body, you can TELL if you are doing the right things. </p><p></p><p>I don't know if this would help ANYONE else. I just know that for my body there simply was not any benefit and there was a LOT of harm from forcing myself to take all those vit D supplements. </p><p></p><p>I just am thankful that it has helped that problem. VERY thankful!!</p></blockquote><p></p>
[QUOTE="susiestar, post: 513209, member: 1233"] I actually don't have a clue if my vit D levels are up or not. The doctor forgot to order them. He thought since my calcium levels were on the high side of good that the vit D testing wasn't needed. He forgot somehow that the calcium levels were up because it was coming OUT of my bones, nto going into them. I was beyond frustrated when he did this three times, then figured I just couldn't continue to stress over it - stress had to be as bad and the low D levels. Honestly, they don't really know why/how my bones got better. No one has a clue and it is NOT supposed to work that way. When the first bone density scan was run they actually did it a second time for free, telling me the results were not possible for a woman in her thirties. I went to the endocrinologist that the doctor wanted me to see, figured out how to get the shots and how to try to keep the supplements down, and it all tore up my body. Right now they are pretty much as clueless as they were after the first test. We did NOT take any of the bone building medications because I have a long history of gastric problems and because if you don't have enough calcium and vit D in your body, the bone building medications can put you in what my rheumatologist called "complete agony that we mostly just give you enough morphine to sedate you for the time until it is out of your body" and he was pretty darn sure that as I was already on a lot of pain medications that it would involve a lengthy hospital stay. At the time he had a patient in the hospital in a medically induced coma to get her to the point the bone building medication was out of her system. He said that few docs that he talked to knew that the bone building medications woudl do that if your body wasn't able to put the calcium into your body, and that they were all pretty upset that there was NO warning to them about this from the drug companies. He was a super caring, very sweet, very much on top of the latest research doctor, and even went to several conferences specifically for patients with osteoporosis/poenia to see what other docs were doing in patients who did not tolerate Vit D. He ended up with about four of us from all over the state because he asked so many questions and other docs sent people to him. So after he had done all that, when he said to be super wary about the bone building medications (boniva, actonel are the ones he meant), I listened and flat out told the docs it would take more to convince me that the medication was a good choice for ME. Anyway, I did go through several months where I ate a LOT more than1 yogurt a day, some days it was all I ate other than fruits and veggies. NOT the healthiest, esp as there is only one flavor that doesn't make me sick to my stomach (texture/taste issue - so many remind me of snot that it is just not funny and I totally am the source of my kids' sensory issues and I totally own up to that! I am a pickier eater than my kids are!), so it is a challenge. I learned a LONG time ago that docs are probably more confused that patients/parents are about the body. I drive husband nuts with this because he thinks that docs know everything and I generally have an idea of what I want them to do and why and I am not terribly patient when they don't agree with me. If the doctor will explain what/why he thinks his way is better, I will TRY. But that try is fairly short if I don't see positive results. I am sure I am a challenging patient, but mostly it is because I want to know the reasoning behind the diagnosis/rx/plan. I also want to be consulted and not ordered. And I only get worse if it is my kid. So few docs will admit that they are totally clueless and that scares me. I think MANY of us would be better served by following our instincts and remembering that moderation is the best thing for almost every problem. well, except allergies. But for most things? If you pay attention to your body, you can TELL if you are doing the right things. I don't know if this would help ANYONE else. I just know that for my body there simply was not any benefit and there was a LOT of harm from forcing myself to take all those vit D supplements. I just am thankful that it has helped that problem. VERY thankful!! [/QUOTE]
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