We went to see the third neurologist yesterday. I intended to post this last night but I kept getting distracted - partially by Jess and husband because our new phones arrived yesterday. (The new phones are cool!) We went to the doctor and got there, I thought, Late. Turns out we were way early. Thank Heavens, because they changed all the road signs and we spent twenty minutes driving around in circles. We get the infernal paperwork filled out and the doctor comes into the room. He starts off telling us that he has read all the info on her and there is no movement disorder. It is anxiety. Period. He then says that she does not have the Absence Epilepsy because it was not seen on the 20 minute EEG. I ask what he is using to rule out a movement disorder and he very arrogantly says that he has seen all the movement disorders and this just isn't one. I was getting MAD. So we go over what the docs say. Turns out he MISSED a doctor. Has no info from the second neuro. So he leaves the room to go find out what that doctor had to say. Jess is MAD. I had to keep her from walking out. I assured her that we are NOT giving up. Not under any circumstanced, gg/c there are a LOT of disorders that most docs never even read of in a medical journal. She is relieved. Had truly thought there was nowhere to turn if the DOCTOR said it was "all in her head" as she thought of the anxiety (because the old pediatrician and the second neuro both told us this using this phrase.) This doctor is SURE it is anxiety before he sets eyes on her. Totally refused to think of anything else because he is so sure. I walked, but if nothing else we need to get help to get her on different epilepsy medications. This neuro had a REPORT from a Dr. G, a psychologist that we "saw". He INSISTED that we "saw" this doctor. She is the one that was in the room when the pain doctor refused to do anything. Said maybe 3 sentences to us to suggest biofeedback. I told her we were already doing it and she left the room. It was incredible to me that she could write a "report" based on less than 3 minutes in a room with us. Literally 180 seconds. I told the doctor that I did NOT find her "report" credible because she spent less than 3 minutes in the room with us and had no chance to figure out anything or examine Jessica in any way. I intend to write this doctor a letter because I think it was irresponsible of her to "diagnose" Jessica this way. The doctor came back from talking to neuro #2. Said that he was up on that. Nothing in the report about anything other than anxiety. I told him that I had no clue what the doctor wrote in the report since those were not shared with patients. ALL I knew is what he told us. Period. What he TOLD us, exactly, was that he was not interested in figuring out what this movement disorder was. I am so sick of docs telling us one thing and writing another. Or writing things up when they have not done a responsible exam. There were reports by the frimpin' medication STUDENTS that were with the pain doctor giving THEIR opinions. Number 3 mentioned these as though they were GOSPEL! Number 2 did say he wanted to help. He says that her migraine history makes her more likely to experience pain more intensely than other people. Apparently research now says that if you have a person with migraines and one without and they experience the same pain, the one with migraines will experience it more severely, so more severe treatment must be taken. At least he will try some treatment. I did point out that the EEG that showed "no absence epilepsy" was done on both lamictal AND keppra and that maybe no seizures were shown because she was on medications. I did not think the conclusion that she has outgrown the epilepsy was correct. The doctor changed his thinking and said that we needed to go to a stronger dose on her medications rather than taking her off. He actually used my notebook to write out his medication plan for her. Usually they either use a form or expect me to write it all down. It was a nice change. So was seeing him change his mind on something he was adamant about. We are weaning off the keppra over 6 weeks, increasing the lamictal over 2 weeks, lowering the aleve, stopping zantac and tylenol, increasing the prilosec and lyrica, continuing with lidoderm, midrin and albuterol, stopping the soma and starting norgesic forte and vitamin b6. At least we have some kind of PLAN. It is worth trying while I do some work at finding more info on my own about it. Anyway, that is where we are now. I hope we can relieve some of her pain with this new plan. Thanks for all the good thoughts and prayers and everything. They are much appreciated. Jess wants to tell you all thank you. She really appreciates all the support and the help trying to us figure this out. Thanks.