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things that make you go hmmmmmm.....
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<blockquote data-quote="susiestar" data-source="post: 365526" data-attributes="member: 1233"><p>Vitamin D deficiency is nothing to play with. My docs didn't do anything for mine for almost a year and never once said it was even a minor deal. Then all of a sudden I guess they realized they had ignored it. I went for several years with almost none in my system and now I am paying a huge price. Your bones soften and become painful and it destroys your teeth. There are so many more problems caused by it. </p><p></p><p>In my case they think it went back to childhood because most foods with Vit D make me quite sick to my stomach and always have. I did specially compounded shots at over $200 per month because I couldn't keep oral Vit D down even with anti nausea medications. Then I got to where I could force myself to keep it down but I still have to take 3 times the standard recommended dose and after a couple of years am still not up to the recommended amount. I live on antinausea medications and with an upset stomach. </p><p></p><p>Do whatever you can to treat this aggressively. If she can tolerate the sun adding just 15-30 mins a day will help. It MUST be without sunscreen though. I don't tan and get very very ill from sun exposure or heat. My skin gets a strange texture and quickly stops sweating regardless of how much water I drink. The skin actually looks like I have saran wrap stretched over it, it is scary looking to my kids and their friends if I have been in the sun more than just a couple of minutes. </p><p></p><p>PLEASE do not let your daughter ignore this!!! It will take so much from her life and possibly leave her with lifetime pain problems. Softening bones HURT. ALL the time. I cannot describe the pain but it is enough to drive you crazy. Quite literally. Lots of the last few years I have missed out on because I am either sick to my stomach or in severe pain even with some of the strongest pain medicines that are made. </p><p></p><p>It also causes problems with moods. It contributed to hideous PMS before the hysterectomy. </p><p></p><p>If you can deal with this now, and keep on top of it, then she can avoid many of these problems. I am not saying my problems to whine or for sympathy. I just want you to see some of the other problems with a long term severe deficiency that is untreated. Your daughter may think that you and the doctor are over reacting. Please have her read this and if she wants to ask questions I would be happy to answer them. Sometimes our kids won't believe us no matter how right we are but they will believe a stranger, almost any stranger. While that makes EVERY parent want to scream, it is one reason why we are here. (To have someone listen to us scream, lol!)</p><p></p><p>In spite of the problems I have a good life and many blessings. I am thankful everyday for so many things, including the fact that I know about this deficiency and can take steps to help it. I just don't want your daughter or anyone else to not realize how serious this can be. I am not even 41 and the docs right now are alarmed because they cannot get the levels of Vit D and Calcium up enough for me to take any of the bone building medications like boniva or fosamax. If you take those with-o enough available calcium and Vit D you end up with very severe pain. That, right now, is our goal. For me to choke down enough Vit D and Calcium to be able to start one of those medications in a year or so. I am just thankful that I may have a chance to take the medications, that they will be there when I can take them!</p><p></p><p>I am sorry she is faced with this, and that you are. I hope this helps. At least you know you are not alone with it.</p><p>(((hugs)))</p></blockquote><p></p>
[QUOTE="susiestar, post: 365526, member: 1233"] Vitamin D deficiency is nothing to play with. My docs didn't do anything for mine for almost a year and never once said it was even a minor deal. Then all of a sudden I guess they realized they had ignored it. I went for several years with almost none in my system and now I am paying a huge price. Your bones soften and become painful and it destroys your teeth. There are so many more problems caused by it. In my case they think it went back to childhood because most foods with Vit D make me quite sick to my stomach and always have. I did specially compounded shots at over $200 per month because I couldn't keep oral Vit D down even with anti nausea medications. Then I got to where I could force myself to keep it down but I still have to take 3 times the standard recommended dose and after a couple of years am still not up to the recommended amount. I live on antinausea medications and with an upset stomach. Do whatever you can to treat this aggressively. If she can tolerate the sun adding just 15-30 mins a day will help. It MUST be without sunscreen though. I don't tan and get very very ill from sun exposure or heat. My skin gets a strange texture and quickly stops sweating regardless of how much water I drink. The skin actually looks like I have saran wrap stretched over it, it is scary looking to my kids and their friends if I have been in the sun more than just a couple of minutes. PLEASE do not let your daughter ignore this!!! It will take so much from her life and possibly leave her with lifetime pain problems. Softening bones HURT. ALL the time. I cannot describe the pain but it is enough to drive you crazy. Quite literally. Lots of the last few years I have missed out on because I am either sick to my stomach or in severe pain even with some of the strongest pain medicines that are made. It also causes problems with moods. It contributed to hideous PMS before the hysterectomy. If you can deal with this now, and keep on top of it, then she can avoid many of these problems. I am not saying my problems to whine or for sympathy. I just want you to see some of the other problems with a long term severe deficiency that is untreated. Your daughter may think that you and the doctor are over reacting. Please have her read this and if she wants to ask questions I would be happy to answer them. Sometimes our kids won't believe us no matter how right we are but they will believe a stranger, almost any stranger. While that makes EVERY parent want to scream, it is one reason why we are here. (To have someone listen to us scream, lol!) In spite of the problems I have a good life and many blessings. I am thankful everyday for so many things, including the fact that I know about this deficiency and can take steps to help it. I just don't want your daughter or anyone else to not realize how serious this can be. I am not even 41 and the docs right now are alarmed because they cannot get the levels of Vit D and Calcium up enough for me to take any of the bone building medications like boniva or fosamax. If you take those with-o enough available calcium and Vit D you end up with very severe pain. That, right now, is our goal. For me to choke down enough Vit D and Calcium to be able to start one of those medications in a year or so. I am just thankful that I may have a chance to take the medications, that they will be there when I can take them! I am sorry she is faced with this, and that you are. I hope this helps. At least you know you are not alone with it. (((hugs))) [/QUOTE]
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