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<blockquote data-quote="flutterby" data-source="post: 377289" data-attributes="member: 7083"><p>I started Mestinon for Myasthenia Gravis a week ago. I used to be able to do about one thing, maybe two a day. When I had appointments and running around, I would be down for days after. A trip to the grocery store would put me down for days. Often, I was too weak and exhausted after I got home to put groceries away - would just put away the fridge/freezer items and leave the rest out.</p><p></p><p>I just got done cleaning and I cleaned for 3 hours! And hard, deep cleaning, too. Before, if I ran the vacuum, I could barely stand and I couldn't use my right hand/arm for about an hour or so after - I couldn't even turn a doorknob. And look at this - I'm typing a post! My brain isn't foggy from the fatigue and I can actually think (something else that used to go when I overdid it).</p><p></p><p>I'm so excited I can hardly stand it. </p><p></p><p>My physiatrist is ordering a chest CT to check my thymus gland as it plays a big role in MG. He's also doing a brain MRI with-contrast to rule out MS. He doesn't want to diagnosis something and then let it go and miss something else. Then he's going to send me to a neuro who specializes in MG for a second opinion and to make sure I'm on the proper treatment plan. However, he wants to continue to treat me - he said I would probably only see the neuro once. I've had so many contradicting diagnosis's, whatever, from specialists that it worried me and I asked him - what if I see this neuro and he says I don't have MG. He said that we won't believe him. The mestinon is working and it wouldn't be doing anything if it wasn't MG. I love this doctor (and it's not only because he's cute and not married <img src="/community/styles/default/xenforo/smilies/tongue.png" class="smilie" loading="lazy" alt=":tongue:" title="tongue :tongue:" data-shortname=":tongue:" />). </p><p></p><p>Happy day!</p></blockquote><p></p>
[QUOTE="flutterby, post: 377289, member: 7083"] I started Mestinon for Myasthenia Gravis a week ago. I used to be able to do about one thing, maybe two a day. When I had appointments and running around, I would be down for days after. A trip to the grocery store would put me down for days. Often, I was too weak and exhausted after I got home to put groceries away - would just put away the fridge/freezer items and leave the rest out. I just got done cleaning and I cleaned for 3 hours! And hard, deep cleaning, too. Before, if I ran the vacuum, I could barely stand and I couldn't use my right hand/arm for about an hour or so after - I couldn't even turn a doorknob. And look at this - I'm typing a post! My brain isn't foggy from the fatigue and I can actually think (something else that used to go when I overdid it). I'm so excited I can hardly stand it. My physiatrist is ordering a chest CT to check my thymus gland as it plays a big role in MG. He's also doing a brain MRI with-contrast to rule out MS. He doesn't want to diagnosis something and then let it go and miss something else. Then he's going to send me to a neuro who specializes in MG for a second opinion and to make sure I'm on the proper treatment plan. However, he wants to continue to treat me - he said I would probably only see the neuro once. I've had so many contradicting diagnosis's, whatever, from specialists that it worried me and I asked him - what if I see this neuro and he says I don't have MG. He said that we won't believe him. The mestinon is working and it wouldn't be doing anything if it wasn't MG. I love this doctor (and it's not only because he's cute and not married :raspberry-tounge:). Happy day! [/QUOTE]
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