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<blockquote data-quote="buddy" data-source="post: 503852" data-attributes="member: 12886"><p>Oh my dear, I can relate to much of what you are saying. Sad thing for me, my son has a known brain injury/surgery etc. and was diagnosis with autism at the age of 4 but still I have lived that life. the level of dismissing you in both the school and medical community oh my gosh, you must be exhausted. My son had seizures when he had his brain mass and was on medications for a few years. We stopped and by third grade he was saying he felt "fake" he would act out and then get headaches and sleepy. they said it was anxiety. he finally got a neuro who we had had previously and came back to our area and she said, oh no.. put him in for three days and found out he was having temporal lobe seizures all day and night on and off...poor kid. Seizure medications are helping his symptoms a lot but not perfect. </p><p></p><p>For quite a while things were much better for us, we had a team that did a behavior analysis and developed a plan that was working but not to the satisfaction of the administration so I get daily phone calls too. the stomach turning oh my gosh can't you people get it that this is a kid with special needs kind of call. </p><p> </p><p>what kind of IEP is he on? Is he in a mainstream setting totally or in a resource room in a school? Does he have a special education teacher? </p><p></p><p>Have they done an FBA and written a POSITIVE behavior plan? if they have is it working (clearly not) so they need to update it and add goals to the IEP to teach the skills that he is missing.</p><p></p><p>outside of school, has he ever had a complete neuropsychological evaluation? An Occupational Therapy evaluation for sensory and motor issues ? </p><p></p><p>Does he have any friends? any unique talents, hobbies or interests? </p><p></p><p>I am sorry for your tears. I am sure there is a lake as big as lake superior that could be created from the amount of parental tears shed from this board.</p><p></p><p>(did you mean your work is saying that they are going to fire you or that you are going to "lose it" like go nutso (feeling like that myself)).... I had to quit my job to care for my son. </p><p></p><p>Every time the school says something to you like that you should move him to a special school... write down exactly what they say. If they are not giving him an appropriate education and he is not meeting his goals then they must provide him a place to do that and they must pay for it. Do they have any programs in your district at all? </p><p></p><p>It really sounds like it is great you are getting better information from the doctors but that an overall evaluation from another source would be very much worth your time and effort. </p><p></p><p></p><p>Hope you have a calm night. </p><p></p><p>Welcome again, hope you check in frequently... many of us find this place the only place where people can really understand the nature of this intensive parenting experience.</p></blockquote><p></p>
[QUOTE="buddy, post: 503852, member: 12886"] Oh my dear, I can relate to much of what you are saying. Sad thing for me, my son has a known brain injury/surgery etc. and was diagnosis with autism at the age of 4 but still I have lived that life. the level of dismissing you in both the school and medical community oh my gosh, you must be exhausted. My son had seizures when he had his brain mass and was on medications for a few years. We stopped and by third grade he was saying he felt "fake" he would act out and then get headaches and sleepy. they said it was anxiety. he finally got a neuro who we had had previously and came back to our area and she said, oh no.. put him in for three days and found out he was having temporal lobe seizures all day and night on and off...poor kid. Seizure medications are helping his symptoms a lot but not perfect. For quite a while things were much better for us, we had a team that did a behavior analysis and developed a plan that was working but not to the satisfaction of the administration so I get daily phone calls too. the stomach turning oh my gosh can't you people get it that this is a kid with special needs kind of call. what kind of IEP is he on? Is he in a mainstream setting totally or in a resource room in a school? Does he have a special education teacher? Have they done an FBA and written a POSITIVE behavior plan? if they have is it working (clearly not) so they need to update it and add goals to the IEP to teach the skills that he is missing. outside of school, has he ever had a complete neuropsychological evaluation? An Occupational Therapy evaluation for sensory and motor issues ? Does he have any friends? any unique talents, hobbies or interests? I am sorry for your tears. I am sure there is a lake as big as lake superior that could be created from the amount of parental tears shed from this board. (did you mean your work is saying that they are going to fire you or that you are going to "lose it" like go nutso (feeling like that myself)).... I had to quit my job to care for my son. Every time the school says something to you like that you should move him to a special school... write down exactly what they say. If they are not giving him an appropriate education and he is not meeting his goals then they must provide him a place to do that and they must pay for it. Do they have any programs in your district at all? It really sounds like it is great you are getting better information from the doctors but that an overall evaluation from another source would be very much worth your time and effort. Hope you have a calm night. Welcome again, hope you check in frequently... many of us find this place the only place where people can really understand the nature of this intensive parenting experience. [/QUOTE]
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