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this will either break her or phobia
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<blockquote data-quote="Jena" data-source="post: 383389" data-attributes="member: 4514"><p>marg,</p><p> </p><p>just read this. i'm on a breakdown schedule actually. and it doesnt' stop me from functioning well and making decisions at this point. only when i'm lacking sleep at night and i'm overtired from a 6 hour drive each way to get there.</p><p> </p><p>as far as my family is concerned you can only control so much in life. people cant' always hold it together when they love a child who they have seen struggle since birth off and on. i find you look too deeply into things at times, i do appreciate your thoughts. yet at times things are simply what they are with no hidden agenda's or meanings they just are.</p><p> </p><p>as far as my strength is concerned i'm ok, i always am, yet when you have zero faith in a treatment team or close to none it is hard to walk strong in your belief that your child will be well. this dr. also might very well be wrong and openly admitted that. he is making this a power struggle. i remember some of my college pysch classes a bit lol and number one rule is never get into a power struggle with-your child it proves nothing and just escalates the situation.</p><p> </p><p>today and yesterday difficult child has totally shut down, is not eating or drinking now at all. is very convinced her throat is now closing up and is not showering or changing clothes. she has been in same clothes since wednesday now and it's sunday. she gets up sits infront of food cries the entire time, and than she lies back in bed and cries.</p><p> </p><p>i'm giving doctor a matter of days. if this approach doesnt' work i'm taking her out if i can line up another treatment team. i already have calls out to two places which i should speak to tmrw just as a viable back up option. we are now reaching the 2 month mark of no food. the longer this continues the harder it will be to refeed. that i know. as far as family goes it would be great if they could be my tower of strength and their trying yet their very vested in difficult child also so it's hurtful to them plus my mom's considerably older. sorry what happened to your sister. life can be qutie challenging at times</p></blockquote><p></p>
[QUOTE="Jena, post: 383389, member: 4514"] marg, just read this. i'm on a breakdown schedule actually. and it doesnt' stop me from functioning well and making decisions at this point. only when i'm lacking sleep at night and i'm overtired from a 6 hour drive each way to get there. as far as my family is concerned you can only control so much in life. people cant' always hold it together when they love a child who they have seen struggle since birth off and on. i find you look too deeply into things at times, i do appreciate your thoughts. yet at times things are simply what they are with no hidden agenda's or meanings they just are. as far as my strength is concerned i'm ok, i always am, yet when you have zero faith in a treatment team or close to none it is hard to walk strong in your belief that your child will be well. this dr. also might very well be wrong and openly admitted that. he is making this a power struggle. i remember some of my college pysch classes a bit lol and number one rule is never get into a power struggle with-your child it proves nothing and just escalates the situation. today and yesterday difficult child has totally shut down, is not eating or drinking now at all. is very convinced her throat is now closing up and is not showering or changing clothes. she has been in same clothes since wednesday now and it's sunday. she gets up sits infront of food cries the entire time, and than she lies back in bed and cries. i'm giving doctor a matter of days. if this approach doesnt' work i'm taking her out if i can line up another treatment team. i already have calls out to two places which i should speak to tmrw just as a viable back up option. we are now reaching the 2 month mark of no food. the longer this continues the harder it will be to refeed. that i know. as far as family goes it would be great if they could be my tower of strength and their trying yet their very vested in difficult child also so it's hurtful to them plus my mom's considerably older. sorry what happened to your sister. life can be qutie challenging at times [/QUOTE]
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this will either break her or phobia
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