DammitJanet
Well-Known Member
As most of you know who, I have some severe degenerative arthritis in my knees, hips and ankles and it appears that it may have traveled to my spine. Flutter was kind enough to remind me that at some point someone also gave me the diagnosis of ankylosing spondylitis several years ago to which could be the reason my back has finally decided to just give out on me now.
I really am a loss as to what I am supposed to do when I am having a very hard time even getting myself from the bed to the bathroom and once, maybe twice a day to the kitchen to get a drink to keep me hydrated. I try to keep some sort of potted meet in my room so I can eat. That and little debbies.
The doctor tried to tell me to increase my medications up to 60 mgs twice a day and I simply cant handle that dose. I can barely handle the 30 mgs a day. Im loopy on it and dont feel comfortable driving.
My back is so bad even on the extra medications that it still hurts to attempt to do anything. Dog tore up the trash and I tried to pick it up and I was almost in tears doing it. Dog shouldnt have had the chance because Billy should have done his job and cleaned the kitchen and taken the danged trash out but instead he let it build up for 4 days and piled it up on top of the trash can in two huge black bags and the the dog pulled one huge bag down and strewed that big bag all over the floor! Trash with fluid and nasty stuff all over the floor. I tried to pick it up in the night but i couldt do it and he came out in the morning and just kicked in into a corner and went on about his day. Now he had off two whole days while Tony was gone working and only worked a half a day another. Tony left on Thursday. Cory is working with him now so he wasnt around (TG!) Billy worked from 1 to 9 on thursday but I had sent him an email telling him he was responsible from now on for the entire kitchen duties, including all washing of every eating and cooking utensils, cleaning off all counters, taking out all trash, cooking all meals and figuring out what we need for meals. If I am able to go the store I will go, if no, I will send him. Billy wasnt happy I sent that to him on face book. Boo hoo. He should be doing that anyway I think.
Well tony came home tonight and the place was a pigstye. He heard from me on the phone that all Billy had brought me home to eat was a dollar cheeseburger because "he was trying to save him money" again as an excuse but I certainly wasnt cheap when I paid for dinners when I bought chinese for both of us during the week end! So he tip toed into my door and looked at me and said, NOT AT YOU OK? and I nodded my head and he went on a rampage through the kitchen at the top of his lungs throwing things in the trash saying he didnt understand how anyone could walk past this kitchen multiple times day and not smell how nasty it smelled and NOT do something about it. Some one just had to plain Fing nasty to do that. And how could you just look at the kitchen and know that the person who normally did the work in there was sitting in a bed disabled and not even lift a finger to help out? Absolutely disgusting.
See...Tonys mom was disabled by the time she died and he and his brothers had to take care of her and they would have let it get to this shape. I think thats what bothers him the most. I am really going to talk to my doctor about getting a hospital bed and a nurse or aid who can come in and help me a few days a week. I need someone who can at least help me do my own laundry. If I can get one of those electric scooters it may fit through the doors that the wheelchair doesnt because the chair has the handles and all.
I really am a loss as to what I am supposed to do when I am having a very hard time even getting myself from the bed to the bathroom and once, maybe twice a day to the kitchen to get a drink to keep me hydrated. I try to keep some sort of potted meet in my room so I can eat. That and little debbies.
The doctor tried to tell me to increase my medications up to 60 mgs twice a day and I simply cant handle that dose. I can barely handle the 30 mgs a day. Im loopy on it and dont feel comfortable driving.
My back is so bad even on the extra medications that it still hurts to attempt to do anything. Dog tore up the trash and I tried to pick it up and I was almost in tears doing it. Dog shouldnt have had the chance because Billy should have done his job and cleaned the kitchen and taken the danged trash out but instead he let it build up for 4 days and piled it up on top of the trash can in two huge black bags and the the dog pulled one huge bag down and strewed that big bag all over the floor! Trash with fluid and nasty stuff all over the floor. I tried to pick it up in the night but i couldt do it and he came out in the morning and just kicked in into a corner and went on about his day. Now he had off two whole days while Tony was gone working and only worked a half a day another. Tony left on Thursday. Cory is working with him now so he wasnt around (TG!) Billy worked from 1 to 9 on thursday but I had sent him an email telling him he was responsible from now on for the entire kitchen duties, including all washing of every eating and cooking utensils, cleaning off all counters, taking out all trash, cooking all meals and figuring out what we need for meals. If I am able to go the store I will go, if no, I will send him. Billy wasnt happy I sent that to him on face book. Boo hoo. He should be doing that anyway I think.
Well tony came home tonight and the place was a pigstye. He heard from me on the phone that all Billy had brought me home to eat was a dollar cheeseburger because "he was trying to save him money" again as an excuse but I certainly wasnt cheap when I paid for dinners when I bought chinese for both of us during the week end! So he tip toed into my door and looked at me and said, NOT AT YOU OK? and I nodded my head and he went on a rampage through the kitchen at the top of his lungs throwing things in the trash saying he didnt understand how anyone could walk past this kitchen multiple times day and not smell how nasty it smelled and NOT do something about it. Some one just had to plain Fing nasty to do that. And how could you just look at the kitchen and know that the person who normally did the work in there was sitting in a bed disabled and not even lift a finger to help out? Absolutely disgusting.
See...Tonys mom was disabled by the time she died and he and his brothers had to take care of her and they would have let it get to this shape. I think thats what bothers him the most. I am really going to talk to my doctor about getting a hospital bed and a nurse or aid who can come in and help me a few days a week. I need someone who can at least help me do my own laundry. If I can get one of those electric scooters it may fit through the doors that the wheelchair doesnt because the chair has the handles and all.
