Hound dog
Nana's are Beautiful
We're just back from the apointment with the oncologist. And I'll be upfront with the fact that I haven't had time to digest the new blood work results, or what she said. But wanted to not keep you all waiting for the update.
While Travis' wbc count is "normal" his lymphocyte count is elevated quite a bit. It shouldn't be, and is a more profound result since the wbc count itself is within normal range. (meaning he isn't sick right now) So more extensive testing is being done. Based on those results he may be facing another bone marrow exam, and a battery of other testing.
So, we're right back at hurry up and wait.
What I don't like about it is that she's holding off for a whole month. Seems awfully long to be twiddling your thumbs to me.
I going to think about a second opinion. I don't like the way I'm not being listened to, and Travis isn't being listened to. I keep getting from her that the "normal" rbc count is great and nothing to worry about although I've told her 4 times Travis is showing signs of another stroke. (the bleed would explain the "normal" rbc results) And even she admitted that with the polycythemia his blood count shouldn't "go back to normal" on it's own. Because I pinned her down on it.
I'm really getting tired of the " We don't know why's" I'm getting with these people.
Ok, to look at Travis he doesn't appear accutely ill. Not today, not when he was at his last appointment. I'll give her that. But she wasn't there when he was horribly sick last week and look like death warmed over either and couldn't make it across the room. Ok, Travis did not see her during his weight gain over the past 3 yrs so she could see that he's suddenly dropped a huge amount of weight. Going from a near size 40 waist back to a 32/34 to me is a huge weight loss especially when none of his habits have changed. Why on earth would we lie about something like that???
I keep getting "when we look at a young man Travis' age, healthy with no underlying issues...." Excuse me?? I've told them repeatedly of his dxes and the neurological regressions that led us to HER in the first d-a-mn place! We keep going thru his symptoms over and over. ugh What's the use, they're not listening. Too d-a-mn focused on his age, for pete's sake. And poo pooing everything so as not to worry us, while making it clear that it is extremely important that this be follow up and monitored closely.
Yep. I've run into this type too many times before. I'm thinking even as I type this a 2nd opinion is in order. Just need to decide on whether to wait til this last batch of tests are all back or not.
Ugh
While Travis' wbc count is "normal" his lymphocyte count is elevated quite a bit. It shouldn't be, and is a more profound result since the wbc count itself is within normal range. (meaning he isn't sick right now) So more extensive testing is being done. Based on those results he may be facing another bone marrow exam, and a battery of other testing.
So, we're right back at hurry up and wait.
What I don't like about it is that she's holding off for a whole month. Seems awfully long to be twiddling your thumbs to me.
I going to think about a second opinion. I don't like the way I'm not being listened to, and Travis isn't being listened to. I keep getting from her that the "normal" rbc count is great and nothing to worry about although I've told her 4 times Travis is showing signs of another stroke. (the bleed would explain the "normal" rbc results) And even she admitted that with the polycythemia his blood count shouldn't "go back to normal" on it's own. Because I pinned her down on it.
I'm really getting tired of the " We don't know why's" I'm getting with these people.
Ok, to look at Travis he doesn't appear accutely ill. Not today, not when he was at his last appointment. I'll give her that. But she wasn't there when he was horribly sick last week and look like death warmed over either and couldn't make it across the room. Ok, Travis did not see her during his weight gain over the past 3 yrs so she could see that he's suddenly dropped a huge amount of weight. Going from a near size 40 waist back to a 32/34 to me is a huge weight loss especially when none of his habits have changed. Why on earth would we lie about something like that???
I keep getting "when we look at a young man Travis' age, healthy with no underlying issues...." Excuse me?? I've told them repeatedly of his dxes and the neurological regressions that led us to HER in the first d-a-mn place! We keep going thru his symptoms over and over. ugh What's the use, they're not listening. Too d-a-mn focused on his age, for pete's sake. And poo pooing everything so as not to worry us, while making it clear that it is extremely important that this be follow up and monitored closely.
Yep. I've run into this type too many times before. I'm thinking even as I type this a 2nd opinion is in order. Just need to decide on whether to wait til this last batch of tests are all back or not.
Ugh