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TV interview with difficult child 3
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<blockquote data-quote="Marguerite" data-source="post: 319626" data-attributes="member: 1991"><p>The treatment trial difficult child 3 is on, is oxytocin. I've mentioned it here before but on a different thread. He's actually been on a preliminary study where he was given the oxytocin as a single dose only, then at a later date was given a placebo. At the time we didn't know which was which.</p><p></p><p>The way the research was done with that pilot study - we had to go in to see them at Sydney Uni, difficult child 3 not allowed to eat or drink for two hours prior. They gave him the oxytocin in saline in a nasal spray (this is how a number of hormones are given, such as vasopressin). After that we had to wait an hour or so, we used that time to get some food for him (finally allowed to eat). The reason for not eating was to avoid possible nausea problems from the preservative in the nasal spray. But he's clearly OK.</p><p>Then we went back an hour after the nasal spray for a series of computer tests. These tests are mostly tests of facial recognition as well as problem-solving. There is a bar at the bottom of the computer screen which watches where the kid is actually looking, it tracks the eye movements. The eye movements plus the actual results are all noted.</p><p></p><p>The whole process was done twice - once for the oxytocin, once for the placebo. Double-blinded, so the researchers don't know which spray was which and neiter do the subject. </p><p></p><p>Once the pilot study was completed, we were told which one had been the "real stuff" and which the dummy. We were asked if we'd observed any other changes over the time and had to fill in a report on how he's been behaving and any other issues, over the previous month. Then fill it in again over the n ext few months, another lot of forms each month. All the data gets compiled and all the results form all subjects are put together to see if they can begin to find a pattern that indicates benefit.</p><p></p><p>The theory behind this - you may recall that when a baby is breast-fed, it is oxytocin that is secreted by the mother's pituitary, that makes the milk "let down". Similarly, oxytocin is secreted in the mother's bloodstream to help the uterus contract during labour and also continue to contract after birth.</p><p></p><p>A hormone like this will pass into the baby through the mother's bloodstream before birth and through breast milk after birth. They now think that this hormone also plays a part in babies and mothers bonding immediately after birth. They think it could even play a role in face recognition and learning.</p><p>In which case - as a possible treatment for autism, this would be natural, it would aid learning, aid face recognition and hopefully also aid social skills. I tihnk it also would have an extended benefit in ADHD and any other condition where inattention or distractibility causes problems.</p><p></p><p>The current study difficult child 3 is at the end of, has been a 2 month daily treatment. He had to have the nasal spray at home twice a day for two months. It has to be kept in the fridge. We had it organised fairly well, got intoa good routine. They didn't do the double-blinded tihng with each subject - we haven't done two separate trials, only one. We suspect he had placebo, we noticed no change. That was something frustrating with the reporter - he kept asking, "And did you notice any difference?" and we had to say "Not this time, we think difficult child 3 just had saline," and the reporter asked again, "What about when he did the second part, with the hormone?" andwe had to say, "they're not doing it that way - they are trying to do it by having more subjects, not spreading it over too long a time. This way each subject is finished with the nasal spray after 2 months, instead of about 5 (giving a month off in between)."</p><p>The reporter just didn't seem to get it. Probably why they didn't use any of that footage.</p><p></p><p>You're all very kind saying I looked lovely. I guess we're not used to how we look from angles other than the ones we see in the mirror. I also was wearing absolutely no make-up, I realsied after they arrived tat I had missed my chance to pretty up a bit. I'd intended to at least put on a little eyeshadow and contouring, so I looked less - old. But I AM old, I have to remember that. Not difficult sometimes, when my body feels old.</p><p></p><p>But I'm not wearing those jeans again, except for painting! They make me look fat and dumpy, they're too short and too baggy. Besides, I have to wear a belt with them to stop them falling off, so I guess new jeans are on the cards.</p><p></p><p>Hmmm, op shop is open this morning...</p><p></p><p>difficult child 3 has spent much of his life being told he looks like Harry Potter. But I noticed yesterday, he's looking more and more like that guy from Twilight. I told him, he was offended. "You're saying I look like a vampire?"</p><p>"Not just ANY vampire, kiddo. A very good looking one."</p><p>"But still a vampire," he insisted.</p><p>I said that the actor doesn't look like a vampire, except for the white makeup. And difficult child 3 looks like a tanned, healthy version.</p><p></p><p>Or maybe it's just me...</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 319626, member: 1991"] The treatment trial difficult child 3 is on, is oxytocin. I've mentioned it here before but on a different thread. He's actually been on a preliminary study where he was given the oxytocin as a single dose only, then at a later date was given a placebo. At the time we didn't know which was which. The way the research was done with that pilot study - we had to go in to see them at Sydney Uni, difficult child 3 not allowed to eat or drink for two hours prior. They gave him the oxytocin in saline in a nasal spray (this is how a number of hormones are given, such as vasopressin). After that we had to wait an hour or so, we used that time to get some food for him (finally allowed to eat). The reason for not eating was to avoid possible nausea problems from the preservative in the nasal spray. But he's clearly OK. Then we went back an hour after the nasal spray for a series of computer tests. These tests are mostly tests of facial recognition as well as problem-solving. There is a bar at the bottom of the computer screen which watches where the kid is actually looking, it tracks the eye movements. The eye movements plus the actual results are all noted. The whole process was done twice - once for the oxytocin, once for the placebo. Double-blinded, so the researchers don't know which spray was which and neiter do the subject. Once the pilot study was completed, we were told which one had been the "real stuff" and which the dummy. We were asked if we'd observed any other changes over the time and had to fill in a report on how he's been behaving and any other issues, over the previous month. Then fill it in again over the n ext few months, another lot of forms each month. All the data gets compiled and all the results form all subjects are put together to see if they can begin to find a pattern that indicates benefit. The theory behind this - you may recall that when a baby is breast-fed, it is oxytocin that is secreted by the mother's pituitary, that makes the milk "let down". Similarly, oxytocin is secreted in the mother's bloodstream to help the uterus contract during labour and also continue to contract after birth. A hormone like this will pass into the baby through the mother's bloodstream before birth and through breast milk after birth. They now think that this hormone also plays a part in babies and mothers bonding immediately after birth. They think it could even play a role in face recognition and learning. In which case - as a possible treatment for autism, this would be natural, it would aid learning, aid face recognition and hopefully also aid social skills. I tihnk it also would have an extended benefit in ADHD and any other condition where inattention or distractibility causes problems. The current study difficult child 3 is at the end of, has been a 2 month daily treatment. He had to have the nasal spray at home twice a day for two months. It has to be kept in the fridge. We had it organised fairly well, got intoa good routine. They didn't do the double-blinded tihng with each subject - we haven't done two separate trials, only one. We suspect he had placebo, we noticed no change. That was something frustrating with the reporter - he kept asking, "And did you notice any difference?" and we had to say "Not this time, we think difficult child 3 just had saline," and the reporter asked again, "What about when he did the second part, with the hormone?" andwe had to say, "they're not doing it that way - they are trying to do it by having more subjects, not spreading it over too long a time. This way each subject is finished with the nasal spray after 2 months, instead of about 5 (giving a month off in between)." The reporter just didn't seem to get it. Probably why they didn't use any of that footage. You're all very kind saying I looked lovely. I guess we're not used to how we look from angles other than the ones we see in the mirror. I also was wearing absolutely no make-up, I realsied after they arrived tat I had missed my chance to pretty up a bit. I'd intended to at least put on a little eyeshadow and contouring, so I looked less - old. But I AM old, I have to remember that. Not difficult sometimes, when my body feels old. But I'm not wearing those jeans again, except for painting! They make me look fat and dumpy, they're too short and too baggy. Besides, I have to wear a belt with them to stop them falling off, so I guess new jeans are on the cards. Hmmm, op shop is open this morning... difficult child 3 has spent much of his life being told he looks like Harry Potter. But I noticed yesterday, he's looking more and more like that guy from Twilight. I told him, he was offended. "You're saying I look like a vampire?" "Not just ANY vampire, kiddo. A very good looking one." "But still a vampire," he insisted. I said that the actor doesn't look like a vampire, except for the white makeup. And difficult child 3 looks like a tanned, healthy version. Or maybe it's just me... Marg [/QUOTE]
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