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unfreaking believable!!!
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<blockquote data-quote="buddy" data-source="post: 481177" data-attributes="member: 12886"><p>Sharon, that is exactly right. It is THE medication that makes him be able to have control over aggression/anger/rage etc. And it works beautifully at the right dose. I am sure the administration will just say that is an excuse.</p><p></p><p>He is up and ok this morning. He had said yesterday in the car that there were "zings" happening in his head (same temporal lobe spot) just like when he was on the Lamictal. Then he said he was feeling fake a little bit for a couple of days. I wish so badly he would tell us but I suspect part of the problem is exactly that, that it IS happening and his judgement etc. is way off. Right before I was going to change the patches, he had said he felt dizzy and his heart was pounding. I asked if it was a seizure feeling and he said no. Different and it had happened sometimes at the hospital too. HE said, see mom I am sweaty and I took off all my clothes already. He had no fever, no signs of illness, I assume it was withdrawal. </p><p></p><p>Before he left psychiatric hospital when I had my talk about the medication concerns with his doctor. I was lectured about if we switch to Tenex in the summer, to go very very slowly to prevent any cardiac or stroke issues. I said, of course, that is why we are not going to do it during school. But when I called the hospital, the charge nurse was really under-whelmingly concerned. doctor said just put them back on. I called the pediatrician he said do half dose then and add the other 12 hours later. Q said no as usual, I couldn't take the one off (I had put them on even before I called then regretted it instantly)... but typical of him, he said no but came over and let me take it off. </p><p></p><p>I am not going to talk to the patient advocate this time. I am going to just call Dr. Williams directly, he is the one who was so crazy about his doses and all the protections we needed to have blah blah.... I really think, he may not tell me, but he was already saying other doctors were telling him to cover his butt in case anything happened to Q on these doses, he will likely have something serious to say to them about this. I just think they need a procedure to document a visual inspection of any patches twice daily while in the hospital . It does not leave the system immediately so that would be sufficient to catch if they needed to put a patch back on. </p><p></p><p>And, wow, when I think of his staying in the hospital that day he should have been discharged and even the day he did, how carefully we had to walk on eggshells and make his world so stress free to help him cope. They did many things right there, but last time with the Concerta error and this time way more serious with the clonidine error... Really guys he wears TWO TTS 3 !!! patches plus gets .1 three times a day and a prn dose if needed (very rare, but they did it at the hospital and I did it --thank heaven---yesterday at school which probably is why he didn't full on have the BiPolar (BP) reaction.)</p></blockquote><p></p>
[QUOTE="buddy, post: 481177, member: 12886"] Sharon, that is exactly right. It is THE medication that makes him be able to have control over aggression/anger/rage etc. And it works beautifully at the right dose. I am sure the administration will just say that is an excuse. He is up and ok this morning. He had said yesterday in the car that there were "zings" happening in his head (same temporal lobe spot) just like when he was on the Lamictal. Then he said he was feeling fake a little bit for a couple of days. I wish so badly he would tell us but I suspect part of the problem is exactly that, that it IS happening and his judgement etc. is way off. Right before I was going to change the patches, he had said he felt dizzy and his heart was pounding. I asked if it was a seizure feeling and he said no. Different and it had happened sometimes at the hospital too. HE said, see mom I am sweaty and I took off all my clothes already. He had no fever, no signs of illness, I assume it was withdrawal. Before he left psychiatric hospital when I had my talk about the medication concerns with his doctor. I was lectured about if we switch to Tenex in the summer, to go very very slowly to prevent any cardiac or stroke issues. I said, of course, that is why we are not going to do it during school. But when I called the hospital, the charge nurse was really under-whelmingly concerned. doctor said just put them back on. I called the pediatrician he said do half dose then and add the other 12 hours later. Q said no as usual, I couldn't take the one off (I had put them on even before I called then regretted it instantly)... but typical of him, he said no but came over and let me take it off. I am not going to talk to the patient advocate this time. I am going to just call Dr. Williams directly, he is the one who was so crazy about his doses and all the protections we needed to have blah blah.... I really think, he may not tell me, but he was already saying other doctors were telling him to cover his butt in case anything happened to Q on these doses, he will likely have something serious to say to them about this. I just think they need a procedure to document a visual inspection of any patches twice daily while in the hospital . It does not leave the system immediately so that would be sufficient to catch if they needed to put a patch back on. And, wow, when I think of his staying in the hospital that day he should have been discharged and even the day he did, how carefully we had to walk on eggshells and make his world so stress free to help him cope. They did many things right there, but last time with the Concerta error and this time way more serious with the clonidine error... Really guys he wears TWO TTS 3 !!! patches plus gets .1 three times a day and a prn dose if needed (very rare, but they did it at the hospital and I did it --thank heaven---yesterday at school which probably is why he didn't full on have the BiPolar (BP) reaction.) [/QUOTE]
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