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Unsettling realizations of Sammys future
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<blockquote data-quote="Dara" data-source="post: 109507" data-attributes="member: 3572"><p>I know everyone means well. I also know that is very hard to comprehend all of Sammys issues. I know him well and I have a hard time. He is one of those kiddos who goes against everything you expect of a child with issues. There is the norm of dealing and helping children with special needs and the norm just doesnt work with him. Nothing seems to and that is what gets so darn frustrating! We just got back from a healthy meal at Burger King and Sammy was playing in the play area. Well wouldnt you know it, he wouldnt come down. my husband goes in to get him and of course this thing is impossible for us adults to get through not to mention try getting your headbanging tantruming child through there too. I am on the other end because I just had an injection for the 2 herniated discs in my neck an am trying to let that work before I wrestle with Sammy again....TOO LATE! husband pushes him through the tunnel I pull and end up flying down the stupid stairs and guess what, I hurt myself again! husband and I did end up laughing later because there was this poor father and his 2 kids in there eating pretneding not to witness this horrific event. I dont even know the point I am trying to make...I dont think I have one at this point! I think we feel utterly helpless on what to do anymore because nothing works. We have tried so many things and listened to all of the therapists and doctors and done this and that and ignored and gave attention and blah blah blah but the fact is we always end up right back at square one and nothing changes. We are still prisoners in our house. We still cant go anywhere or do anything. We still have to wrestle him leaving places and changing his diaper and saying good job is apparantly a bad thing or asking him if he wants his juice is not good either. Saying lets go play outside thats a big no no. I am just tired and I dont know what else. I am tired of hearing how its my fault. You get to the point where you believe it and second guess every single thing you do wondering is this the cuase or did I do this wrong to cause this.... We cant go on any vacation anywhere. husband and I barely get to spend time alone together. There is no support from anyone we just have each other. I think I have finally reached my breaking point and I was supposed to go to therapy through pain management but my inusrance doesnt cover mental health and we cant afford to pay it plus all of Sammys medical bills which health insurance doesnt cover and I need a job but who will hire me for 4 hours 3 days a week?! Sorry...big vent!</p></blockquote><p></p>
[QUOTE="Dara, post: 109507, member: 3572"] I know everyone means well. I also know that is very hard to comprehend all of Sammys issues. I know him well and I have a hard time. He is one of those kiddos who goes against everything you expect of a child with issues. There is the norm of dealing and helping children with special needs and the norm just doesnt work with him. Nothing seems to and that is what gets so darn frustrating! We just got back from a healthy meal at Burger King and Sammy was playing in the play area. Well wouldnt you know it, he wouldnt come down. my husband goes in to get him and of course this thing is impossible for us adults to get through not to mention try getting your headbanging tantruming child through there too. I am on the other end because I just had an injection for the 2 herniated discs in my neck an am trying to let that work before I wrestle with Sammy again....TOO LATE! husband pushes him through the tunnel I pull and end up flying down the stupid stairs and guess what, I hurt myself again! husband and I did end up laughing later because there was this poor father and his 2 kids in there eating pretneding not to witness this horrific event. I dont even know the point I am trying to make...I dont think I have one at this point! I think we feel utterly helpless on what to do anymore because nothing works. We have tried so many things and listened to all of the therapists and doctors and done this and that and ignored and gave attention and blah blah blah but the fact is we always end up right back at square one and nothing changes. We are still prisoners in our house. We still cant go anywhere or do anything. We still have to wrestle him leaving places and changing his diaper and saying good job is apparantly a bad thing or asking him if he wants his juice is not good either. Saying lets go play outside thats a big no no. I am just tired and I dont know what else. I am tired of hearing how its my fault. You get to the point where you believe it and second guess every single thing you do wondering is this the cuase or did I do this wrong to cause this.... We cant go on any vacation anywhere. husband and I barely get to spend time alone together. There is no support from anyone we just have each other. I think I have finally reached my breaking point and I was supposed to go to therapy through pain management but my inusrance doesnt cover mental health and we cant afford to pay it plus all of Sammys medical bills which health insurance doesnt cover and I need a job but who will hire me for 4 hours 3 days a week?! Sorry...big vent! [/QUOTE]
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