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Update on Buddy's difficult child
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<blockquote data-quote="buddy" data-source="post: 474130" data-attributes="member: 12886"><p>Janet, I am bawling. I think why I feel this way is because many of you are so close yet you make those of us who are new feel just as welcome , supported and even valued for our input as you do eachother. It is very strange how a forum that is really kind of impersonal in that there are no faces or voices, is so intimate and real. You are right...a very special place and my lifeline lately for sure.</p><p></p><p>OK so now ....I called hospital. case manager and asked to have doctor call me. He is so nice. Called me right away and first started talking about things I hadn't thought of just so open and friendly. Doesn't get shocked and again says he is in the right place but that he is unique for them so they just monitor and change things for him when needed, but still push him to do the best he can and not get stuck in his behaviors. That was reassuring. </p><p></p><p>I asked about the medications so far, he is pleased that there are no bad signs and thinks that is enouraging. He said the lamictal will take forever to fully beout o fhis system, not what I was told at first, and so we may be fighting that for a while. </p><p></p><p>I asked about the difference between tics and the compulsive/perseverative (And he said Tourette's like) stuff. He said it is really hard to tell the difference and that in the end it is really down to either way, he does not have the impulse control when his brain is distracted by anything else. I told him about the school issue with his saying those things so loud and in public and admin getting all wigged out. He said, it would be interesting to do a test where they take him off the concerta for a short time and see in a very systematic way how many of the behaviors worsen and if the tics get any better. He said because he is on such a high dose of clonidine it probably cancels out tics that would be caused severely by the high concerta he is on. He said the first day when he got medications late was good example that he NEEDS the medications because all hell broke loose. But now that they know him they can compare him on medications versus off to show them how biological it all is. Interesting idea, and I dont have to contain him, so I said go for it. He said we can do all kinds of behavior counts and take advantage of his being here so I can amunition to get appropriate services for him. I am thinking I like this guy.</p></blockquote><p></p>
[QUOTE="buddy, post: 474130, member: 12886"] Janet, I am bawling. I think why I feel this way is because many of you are so close yet you make those of us who are new feel just as welcome , supported and even valued for our input as you do eachother. It is very strange how a forum that is really kind of impersonal in that there are no faces or voices, is so intimate and real. You are right...a very special place and my lifeline lately for sure. OK so now ....I called hospital. case manager and asked to have doctor call me. He is so nice. Called me right away and first started talking about things I hadn't thought of just so open and friendly. Doesn't get shocked and again says he is in the right place but that he is unique for them so they just monitor and change things for him when needed, but still push him to do the best he can and not get stuck in his behaviors. That was reassuring. I asked about the medications so far, he is pleased that there are no bad signs and thinks that is enouraging. He said the lamictal will take forever to fully beout o fhis system, not what I was told at first, and so we may be fighting that for a while. I asked about the difference between tics and the compulsive/perseverative (And he said Tourette's like) stuff. He said it is really hard to tell the difference and that in the end it is really down to either way, he does not have the impulse control when his brain is distracted by anything else. I told him about the school issue with his saying those things so loud and in public and admin getting all wigged out. He said, it would be interesting to do a test where they take him off the concerta for a short time and see in a very systematic way how many of the behaviors worsen and if the tics get any better. He said because he is on such a high dose of clonidine it probably cancels out tics that would be caused severely by the high concerta he is on. He said the first day when he got medications late was good example that he NEEDS the medications because all hell broke loose. But now that they know him they can compare him on medications versus off to show them how biological it all is. Interesting idea, and I dont have to contain him, so I said go for it. He said we can do all kinds of behavior counts and take advantage of his being here so I can amunition to get appropriate services for him. I am thinking I like this guy. [/QUOTE]
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